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SN children

Here are some suggested organisations that offer expert advice on special needs.

what should i do ?

3 replies

cheeryface · 08/05/2011 21:49

we are seeing someone at camhs tomorrow , a social worker for people with autism who is supposed to be seeing ds2 and deciding if we need to be referred to the asd team.

thing is its a 9-12 month wait for the asd team and things with ds2 are getting worse.
someone is going to get hurt and school is rapidly going downhill so to wait a year is no good whatsoever.
I was thinking of going private as i dont know what else we could do . would this be a bad idea though ?

any suggestions please ?

OP posts:
StarlightMcKenzie · 09/05/2011 00:04

No, but keep your 9-12 month appointment too. Don't tell them that you are going private. If anyone later suggests that your appointment be cancelled tell them that you simply went for a second opinion which just happened to come first as it was private.

It is better to have a NHS multi-disciplinary dx in order to ensure no-one can hold it against you, but the private one will give you the key to services faster.

IndigoBell · 09/05/2011 09:51

I agree with Starlight. Go private and go through the NHS as well.

Good luck.

yomellamoHelly · 09/05/2011 10:04

Second getting a private opinion, though would keep that information to myself unless I had to reveal it (they don't like them at all especially when those opinions are from very qualified people).
Our experience of private opinions is that you can shop around for someone who you think will suit your situation best. Then they're very good at getting straight to the point and seeing what is going on from the start and
have lots of suggestions and back up those suggestions with reference to children in similar situations. So they're very convincing. In the past they've really helped us make sense of / see what is going on better which further informs us of what ds needs. They also have the time to listen to you properly and don't treat you as your child's worst enemy from the outset (!).
Ds has cp though so slightly different.
It's just a completely different experience imo.

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