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Here are some suggested organisations that offer expert advice on special needs.

So angry, got to get it down somewhere.

6 replies

nenevomito · 07/05/2011 15:29

I am so, so, so Angry right now.

DS was referred for clinical assessment by my GP at the end of Feburary. FEBRUARY.

Today I got a letter in the post which I assumed would be some information about the appointment and what happens next.

Was it heck.

No, it was a letter saying that DS has been referred for assessment (yes I know that) and I needed to send back a slip to confirm that I did actually want him assessed as they would only put him onto the waiting list once they receive that slip back. Oh and I should be aware that the waiting list is several months long so and was I really sure I wanted him to be assessed? Ooh and I need to get the slip to them by Tuesday or they will assume I don't want him assessed.

Oh for sake.

If I had got that letter, say, Ooh I don't know, within the first month (to be generous) of his being referred I could just about take it, but to not get any communication between the end of Feb and start of May and then to only get something to tell me that he isn't even on the fucking waiting list now has made me want to explode.

Angry Angry Angry

OP posts:
EllenJaneisnotmyname · 07/05/2011 15:57

I do think a strongly worded letter is in order, or actually better a phonecall backed up in writing. See if you can find out where the three month delay has come from, your GP or the clinic so you know who to shout loudest at then make sure they realise that you have very good grounds to be moved 3 months up the waiting list.

nenevomito · 07/05/2011 16:05

I'm absolutely seething. I would have thought that my going to the GPs and him referring DS was enough of an indication that I wanted DS assessed. Why the hell they think its essential for me to fill in a slip of paper to say I want him assessed so long after the referral is absolutely beyond me.

Do they think that if they leave it for long enough that I'll just change my mind and go, "ooh no, my mistake there are no problems after all, silly me."

Its probably just so they can spin it out for longer as they have too much work on, so all the poor buggers who don't get their slips in for whatever reason then have to go through the whole process of going to the docs again, getting referred again and fillng in a bloody slip of paper again.

Gaaaahhhhh. Angry

OP posts:
yomellamoHelly · 07/05/2011 18:16

This has happened to us on several occasions. And have also been told a couple of times that the wait lists aren't too bad. Mmmmm. So many things wrong with the system.

Becaroooo · 07/05/2011 18:21

I was in a similar situation OP

GP referred ds1 at end of Feb.

Had got to end April and still heard nothing.

So.....rang GP's secretary and asked;

  1. when was the letter dictated?
  2. when was it typed?
  3. when was it sent?
  4. who was it sent to?
  5. for the address and phone number of said person/dept.

I then rang the phone number she gave me and - after being given a further 2 phone numbers! - I got through to someone who told me that my sons case was being discussed the next week at a SPAR (?) meeting and I would be offered an appt based on how quickly the panel felt neccessary.

The next week I got his appt date through...23rd of this month.

I really think if I hadnt rang I would still be waiting.....

Becaroooo · 07/05/2011 18:22

oh, make sure you send it back recorded del so someone has to sign for it!!!!

Triggles · 07/05/2011 18:23

babyheave - unfortunately, in some areas I think that is exactly what they are hoping for - that after too long a wait you'll just give up. Some would, which is horribly sad. I agree that a phone call followed by a strongly worded letter is in order on this. How negligent of them to make you wait this long! Please remember that old phrase about "the squeaky wheel always get the grease." I've found that sometimes mentioning politely that I will be ringing them back regularly to check on the progress tends to move things along rather nicely. Grin

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