Ok so I feel like I should put this all in one post to share/compare in a bleak attempt to see if anyone else can relate, but I doubt it. DD seems to have so many seperate issues, and doesn't seem to fit into any category. I realise I don't have it as bad as some parents here.
She is nearly 4 and has
ASD Traits - probable ASD/AS: loves spinning, licking, hand flapping, repetitive speech pattern (but does have normal speech), obsessive-compulsive behaviour, loves routine & does not cope with change, would rather play with adults than children, delayed play skills, query delayed social skills, often violent (hitting, spitting, scratching, screaming), is hypersensitive in some ways but could throw herself into a wall without any reaction, texture aversion - the list goes on
Medical mostly since birth: Chronic constipation with overflow- has never done a normal poo wthout the aid of Movicol, urinary incontinence/urgency & frequency. Excema, Low immunity, Recieves physio & long term anti-bs for chronic chest infections & URTI, poor hearing due to repeated ear infections, hypermobility, easy bruising & joint pain in several areas, heart/circulation issues- limbs turning blue intermittently, heart murmur BUT nothing on echo/ecg, Seizures - has had documented absences, drop fits, single afebrile tonic clonic, and myoclonics but nothing on last EEG.
I have probably forgotten something but you get the idea. I feel completely unsupported by the "system" apart from one outreach worker from surestart.