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SN children

Here are some suggested organisations that offer expert advice on special needs.

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Original poster

Urgent - need advice on sound therapy

22 replies

loueytb3 · 05/05/2011 19:27

We are at BIBIC with DS1. Therapist has recommended we do Johansen Sound Therapy with him as he has auditory processing disorder. We did AIT with him over Christmas and it definitely made a difference. I was under the impression that if we did AIT we didn't need to do any other form of listening therapy. I am wondering if anyone has done more than one type of listening therapy and if they felt it had an additive effect. Sorry for rushed post - am on my phone with limited mobile access.

OP posts:

mumgoingcrazy · 05/05/2011 19:30

I don't know this for sure, but we are looking into AIT now and we also do Therapeutic Listening, and the AIT clinic said we mustn't do any other listening therapy for a year after AIT.

Someone more knowledgable will come along soon.

smileANDwave2000 · 05/05/2011 19:36

yes i heard that we have a SALT from south africa and shes just bringing AIT to our SS so will be doing AIT and she said same not to do any other sound therapies at same time

oddgirl · 05/05/2011 20:00

Sorry to hijack louey-am also looking at AIT-mumgoing crazy who are you using and how much did it cost?
thanks ladies

Eveiebaby · 05/05/2011 21:14

We did AIT with DD and it is my understanding that you should wait at least a year before doing any other sound therapy or even using headphones as changes in the way the brain processes information could take this long to become evident. Probably worth checking out with whoever you did AIT with to make sure?

oddgirl - We did AIT with Sound Learning Centre - was approx £1300 including assessment - this was a year ago so prices may have changed!

blueShark · 05/05/2011 22:01

loueytb3 - we also did AIT in December and following that BIBIC recommended the Johansen as DS still appeared to have issues with auditory processing. We also did Therapeutic Listening last year but with AIT the results were noticeable as DS went from 2 to 3-4 word level and started following 3 steps instruction.

As mumgoingcrazy said after the AIT no therapy is recommended for at least 9 months as thats the timeframe one should be still seeing results and you dont want to 'spoil' what has been fixed with the AIT. Having said that even the centre that provided the AIT for DS hinted that he may benefit even further from another session after few months which at the time I felt it sounded more like a marketing plot but since BIBIC mentioned it as well I will either do another AIT or Johansen later this year as the results are AMAZING!

I questioned the therapist at BIBIC why Johansen and not the others and was told they have carefully researched them all and seen best results with Johansen which is 18 months therapy 10-15 a day compared to 30 mins twice a day for 10 days with the AIT. The theory is there is no quick fix for the auditory processing with some children hence they go with the gentler version but please question the logic behind it again whilst you there.

oddgirl - there have been some recent threads on the AIT and some one has also suggested this clinic which appears a third of the price that the Sound Learning charges and they lease you the necessary equipment at your home following the assessment at their centre in Reading.

Original poster

loueytb3 · 05/05/2011 22:02

Thank you - we also did AIT at the sound learning centre so I think the year wait will apply. I'm going to discuss it with the therapist tomorrow. It's so difficult - just want to do something that will help.

OP posts:

blueShark · 05/05/2011 22:06

what did the sound learning centre say at the review and what kind of progress did you notice after the AIT? Johansen appeared to me similar to the Therapeutic listening...

Original poster

loueytb3 · 05/05/2011 22:10

X-post blue shark - thanks, that's very interesting as you are in much the same position as us. How old is your DS? DS1 is 4 and I wonder whether being younger means that it doesn't have the full effect as they are still developing.

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blueShark · 05/05/2011 22:15

turning 5 this summer but I thought treating it while younger the effect to be better to be honest...see what the therapist says tomorrow, I will pm you now so that we chat and discuss opinions after your visit there. Hope you finding BIBIC a great help, I was really impressed.

devientenigma · 05/05/2011 22:23

I agree, I have heard and read that the younger the child is when any SIT is used the better.
We have done the listening programme twice but haven't really seen any results.
However they can be used over and over. We've just been offered a third. HTH

Eveiebaby · 05/05/2011 22:50

I know how you feel Louey wanting to do as much as as soon as . We have some NHS sensory integration therapy in a couple of weeks time I am so looking forward to it!

IndigoBell · 06/05/2011 09:14

Right, this is ridiculous, all of us interested in the same thing, and mostly living in the same region. I'm going to have to arrange a meet up for next weekend.

(Will create a sep thread for it :) )

Ruislip Lido. Sat 14th. PM me if you can or can't make it.

(Or if the Lido isn't suitable for your DC PM me with an alternative suggestion.)

blueShark · 07/05/2011 22:07

i shall be there, what time?

supermum98 · 08/05/2011 07:13

Hi all, thanks for info here. Me too thinking about AIT for ds 13 years. Has hypersensitive ears, so not coping with school bus noise at moment and coming out of class because of noise. What do you get on the NHS? Is it worth waiting for that, is it as good as sensory clinic? How much does Reading Centre charge, as we too are not too far away. Would rather go there than London and certainly can't afford thousands? Can't make next weekend, but gr8 idea to get together.

IndigoBell · 08/05/2011 07:44

Reading is approximate £300.

If you can afford £300 I wouldn't bother with the NHS. Not sure how you would get it in the NHS - although I guess you could ring the reading place and ask.....

AIT is really worth doing. Totally improved both DSs and DDs lives.

oddgirl · 08/05/2011 10:00

Thankd for all the advice ladies...sadly cant make the weekends-have to work but let me know how it goes and maybe we could try a meet up one holiday-its fab so many of us are trying to do the same thing...

Eveiebaby · 08/05/2011 20:09

Please let me know if meet up will still be on as I would like to make it! Thanks

bdaonion · 08/05/2011 21:13

This reply has been withdrawn

This has been withdrawn by MNHQ at the poster's request.

supermum98 · 08/05/2011 22:21

IndigoBell thanks for info. Reading isn't as expensive as I thought, fortunately all holidays under canvas this year so could stretch to it. I think I'll probably go for it. Let me know of any meet ups in the future if you can too. Thanx

Original poster

loueytb3 · 09/05/2011 21:18

Very quickly as I'm all out tonight, I can do Sat morning but not afternoon. However, the weather forecast is not looking great. Is there a backup plan?

blueshark - thanks for pm, will reply as soon as I get a chance.

OP posts:

dolfrog · 10/05/2011 00:46

loueytb3

There is no cure for APD, and all of these so called therapies only have limited effects, and many have found that the effects are not long lasting.

Johansen Sound Therapy is a variant of the Tomatis program, as is the Listening Program. AIT is another program but also has its limitations.
When i first started to research APD to help my eldest back in 1998, i found the CAPDListserve, where parents would ask for help for their children who had CAPD as it was known then. Thye would proudly list the programs their children had completed and ask which one they should try next. These would include Earobics, FastForword, LindaMoodBell, and many more. Some were even marketing their programs as the cure for APD. There was also another problem which has now been stopped, some Audiologists were diagnosing APD and then recommending the program they were licensed to provide.

Things have improved in the UK the Medical Research Council officially recognised APD in 2004, and have spent the last 5 - 6 years developing a new universal battery of APD diagnostic tests based on Sound Frequencies, whicu are very close to gaining international recognition.

There is no cure for APD, living with APD is about understanding the nature of the issues that each APD may have, as each APD is different. And then identifying the range of alternative cognitive skills each APD can develop to compensate for their auditory processing deficit.
You may find the APDUK web site has some useful information and especially the following pages
Management of Auditory Processing Disorder
APDUK Newsletters especially No1 and No2
The Power of Visual Thinking
Teaching Reading to Visual-Spatial Learners
Ideas For APD IEPs
APDUK Resources

American Speech-Language-Hearing Association

Auditory integration training and other sound therapies for autism spectrum disorders: a systematic review

There is a great deal more you could have a look at
CiteULike Group: Audiology and Auditory Processing Disorder - library 265 articles

blueShark · 11/05/2011 10:04

thanks dolfrog very useful information...out of interest if a child has done a listening programme or AIT do you reckon there will be better benefits if its repeated of what has been fixed has been fixed and let the child learns to cope or grow out of it?

Weather forecast for this week changes by the day ladies, was meant to rain today and Friday but I see now only on Saturday so fingers crossed may change. The only place I know of in case of a rain is on A40 in Perivale a soft play playground with slides but gets quite busy and noisy on a weekend so may be a challenge for some of our noise sensitive DCs :(

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