Looking for a biomed autism expert

[Seemzz]

Hi, my son was diagnosed with ASD last year at 2 yrs and 3 months. He was a typically developing child with recurrent ear infections and was constantly on antibiotics. A month before his second birthday, he just shut down and withdrew into a shell. We've been doing floortime combined with S&L therapy and SI/OT for almost a year. He has been on a gluten and casein free diet, anti-fungal treatment in the form of nystan and a host of other supplements. I feel that he has'nt really responded to the biomedical/dietary interventions. I was told that given his history, he was an ideal candidate for biomedical. And having read so much anecdotal evidence and so many success stories regarding biomed, I was really hoping for better results. I'm thinking perhaps we need a better doctor to guide us. We are in the London area but are willing to travel so if anyone knows or has had experience with a biomed autism specialist or a DAN doctor, please let me know.

My be you need to go back to understanding the effects of the Ear infections, which could be Otitis Media with Effusion (OME). OME can cause problems with processing sound based stimulation. I have an Otitis Media research paper collectionand an Audiology research paper collection which may provide some insight.

"He was a typically developing child with recurrent ear infections and was constantly on antibiotics." sounds just like my son but he didnt withdraw only slow progressed since 2.

I cannot answer your question but can give you a suggestion to look into it, some form of listening therapy or AIT since this was what helped my son the most so far. And most autism professionals will recommend when you mention the reccurent ear infections considering hearing test result is ok.

Google biomed specialist in Cambridge - I once came accross a book written by parents whose son is now a teenager and doing very well but cant recall it sorry.

I keep on forgetting about my "Computer-Based Auditory Training CBAT" research paper collection which could also be useful

Sorry to be cheeky but could I suggest you also read my ABA thread, as behavioural stuff has been the absolute best thing I ever did for DS (the diet stuff had no effect on him, he is the same boy whatever he eats)

There's some yahoo groups which are the best source of biomed info IMHO. Most obvious one is autism-biomedical-europe. Some seriously knowledgable people on it and Mandi who moderates is very very good. They can give recommendations for practitioners too. Autism-mercury is another one that is v useful.

yes the ABA/VB definitely as sickof says as well..and I am doing it myself with frequent visits from a consultant who oversees progress and adjusts targets

Thanks you so much. We are thinking about ABA/VB, in fact, meeting with a consultant this week. And Ive been told that biomed and ABA go really well together, as it opens up the child to learning.

blueShark, which listening therapy did you do? We are considering tomatis.

Semz, its not something I've tried myself but I have been reading alot about NAET there is a book "say goodbye to autism" for alergy related autism. The tiltle is a bit misleading as of course it is not a cure but it does explain it well. Its available on AMAZON but i'm useless with links.
Maybe worth a look as it is all allergy/intolerance based and the success with children previously on cas/glut free diets is good.
It is much more widely used in the states and many conventional docs there refer the patients.

Seemzz

you need to find out what each program can offer and whether waht the program can offer matches the needs of your child, there are unfortunately no magic bullets.

Tomatis was one of the original programs, along with Auditory Integration Therapy (AIT). Two programs based on Tomatis are the Listening Program, and the Johanson (not sure if spelt correctly) program. there are others and it does become a nightmare working through all of the marketing claims.
And just because a program may work for one chiuld does not mean it will work for yours. All programs are developed because they help someone, but in most cases they do not fully understand the true nature of the cognitive problems, and the cognitive strengths available to work around these problems. And even worse, the program provers are not really able to tell you how and why any program actually works neurologically or scientifically