DD (4) has been referred to paed by SALT, but had a letter from inclusion support today to say she does not have severve enough difficulties/disabilities to qualify...

[josben]

I am not sure how to feel about it - happy that after seeing her inclusion sup did not think her needs were bad enough for help or p*ssed off that she has been refused the help that her teacher feels she needs in school... I think that DD is poss on ASD.

Has anyone else has similar situation?

TIA

Yup - cahms blocked an asd assessment first time round. 2 years and schools later you can guess the result

Yep but not in same way. We saw pead and salt and sn teacher agreed but ms preschool didnt! Delayed assessment and help by six months.

I would try and push it though, girls are so very different to boys with ASD and few professionals see girls enough to know the signs.
I would also start a diary of her behaviours and differculties and take that on too. Hth

agree with Lisa, I'ld be concerned you are being fobbed off, particularly if teacher who knows her well thinks she needs help

Maybe look at getting an independent report and/or private SALT, I think you may be being fobbed off too.

I agree with lisad... I have 2 girls hovering on or around the spectrum and it has been really hard to get their needs recognised.

If her teacher is seeing issues as well as yourself then you should push for an assessment.

Dd3 has had many assessments by different professionals but her school have been completely useless, they have failed to see any of her issues.

You can ask for a second opinion, I would also agree about keeping a diary, ours has helped us no end.

Record any issues that you think are outside the normal range, what happened and how you dealt with it, this shows that you are consistant when handing her.

Good luck.

Thanks so much for your messages, I've had another letter this morning (a copy of the paed referral ) from my DD's SALT who has been liasing with her teacher, and it says :

DD likes one to one with an adult
DD plays along side children and finds it difficult to interact with them appropriately, takes over games
DD has good vocab but some words are not clear / intelligible
DD often does not make eye contact
DD likes set routines
DD often responds inappropriately to questions, talking about whats on her mind rather than answering the question
DD currently has some other learning needs

This has all come from DD's teacher whom she has had since Jan...

It is all so confusing, but I know that I have had concerns about DD since she was around 2 1/2 and there are still worrys like the ones above...

josben

Our eldest son was almost miss diagnosed as being on the Autistic Spectrum, his eventual diagnosis was and still is Auditory Processing Disorder (APD) with some Dyspraxic issues. Following his diagnosis of having APD all of our family have a clinical diagnosis of APD
APD is one of the multiple cognitive disabilities which can combine to cause many of the conditions on the wide Autistic Spectrum.
APD is a listening disability, that causes problems processing what you hear, which includes speech, which creates problems processing conversations, following verbal instructions, and processing the meaning of verbal and written questions.
My eldest sons dyspraxic issues made coping with his APD more difficult.

Like nearly all the developmental deficits or disorders there is a genetic cause, so may be one of your daughters biological parents may share her issues and may haver some insight how best to cope.

How much did that diagnosis cost Dolfrog, and for how many people and by whom. Was a course of therapy recommended. How much did that cost

You need to thnik about what it is you want or believe a SLT can do for your child before you go demanding stuff. SLTs are not able to work msgic and with their massive caseloads, their contact with each child is by defnition,minimal and usually restricted to advice.

You might not actually need SLT in the same way as you might not need the general disorganised mishmash of support thrown at you.

moondog

Auditory Processing Disorder (APD) assessments are provided by the NHS at Great Ormond Street Hospital, the only cost may be traveling to an APD diagnostic centre.
According to the UK Medical Research Council10% of all children have some degree of APD
No course of therapy was recommended, but there are many programs which may be able to help those who have APD, and many programs do make claims to be able to help those who have APD some of which can be very expensive, especially if they provide no help at all, which can happen.

The correct diagnosis for my eldest son was made by an NHS peadiatrian back in 1998, which has subsequently been clinically confirmed.
The First UK APD clinic funded by the NHS was based at Sheffield University, and run by a research Speech and Language Pathologist, before the UK government provided the Medical Research Councils first 5 year APD research program in 2004.

Thanks for that Dolfrog.
So did the NHS diagnose you all?
What purpose do you think a diagnosis serves?

Leonie, no I didn't see you thread and obviously can't suggest a course of action over the internet but I will tell you two things:

I doubt very much you will find an NHS salt able to give you the time and attention your child could use to sort out her language problems.

Re behaviour, the only proven methos of intervention for such things is an approach based on ABA which would involve a careful functional assessment which looks at the purpose or function of your child's behaviour. That is, what she gets out of it for her. You would then be taught how to teach her to gain access to what she wants (attention, escape form demand or other things) in a way that is acceptable to you both.

moondog

Yes the NHS has diagnosed us all, at different times, and ages.

A diagnosis of APD explains that you have a cognitive listening disability, and why we all have various problems processing sound based information including speech. It defines our underlying cognitive cause of our dyslexic symptom, and explains why some may consider us to have "aspergerish" tendancies when we are struggling with word recall and sequencing problems when we are speaking.

Having a diagnosis of APD has also helped prevent a miss diagnosis of ADD or ADHD as it is now known. If you loose the plot during a lesson or lecture due to having a listening disability and begin to day dream it is because you have lost the plot and not because you have poor attention abilities.

Having a Diagnosis of APD also provides a clinical explanation as to why some children and adults can not use phonics, or phonetically learn new words. Which currently the UK government chooses to ignore, and is promoting disability discrimination in the UK education system by insisting that all children use phonics to learn to read, and by not providing an alternative for those who cognitively are not able to use phonics.

Thanks for the information and taking the time to post.

Thanks for your posts. Its all a bit confusing really - hopefully the paed appt will come through fairly quickly seeing as this will be the 2nd referral by the SALT) - the 1st ref (by out GP) i'm still waiting for as got put on a child development clinic waiting list.

I just wondered if anyone could tell me - when you were waiting for paeds appt etc. did you confide in your other mum friends the worrys you had about your DD/DS ?

I have not told anyone as i am scared it will make dd stand out even more at school or in social situations. Plus i do not want other mums discussing our situation between themselves .... The only person i discuss DD's issues with is my mum.