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SN children

Here are some suggested organisations that offer expert advice on special needs.

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Original poster

Help, please

12 replies

keepingthefaith · 14/04/2011 17:02

DS aged 6, awaiting appt with consultant paed (who is also specialst neurologist). He also been referred for poss autism and also to CAMHS.

He was diagnosed with GDD aged 2, but since starting school in August, something more serious is going on.

Main problems now are behaviour. He wont poo in toilet and is "leaking" in nappy pants daily, however, he is also putting his hands in and smearing it everywhere. Worse when in severe meltdown, which is happening more often.

Meltdowns cannot yet be predicted, but he is now swearing, spitting and nipping and problem with hands and poo is far worse when he is angry. He gets so upset afterwards, as if he cant help himself.

Discipline is also a problem as if I remove his favourite wii game, the meltdowns begin! He has also started clapping his hands constantly.

On a good day, you would never know there was anything wrong with him

Any thoughts, please?

OP posts:

cornsilkily · 14/04/2011 17:06

If his behaviour has changed and intensified since the referral (and it sounds like it has)you could write to CAMHS/Paed with the details of his behaviour to let them know and ask them to speed things up. CAMHS always say to us to let them know if anything changes.

Original poster

keepingthefaith · 14/04/2011 17:10

I thought about contacting CAMHS today, but wasnt even sure hed been referred yet. Paed only works term time so wont be in office till next week.

Do you thing CAMHS would help anyway, even if they dont know about him yet?

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cornsilkily · 14/04/2011 17:21

It may speed things up for you. You could see your GP and ask him/her to intervene for you with the paed/CAMHS to get him some help.

Original poster

keepingthefaith · 14/04/2011 17:34

Thanks for that. Agree we now need some help and soon

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zzzzz · 14/04/2011 17:34

This reply has been deleted

Message withdrawn at poster's request.

Original poster

keepingthefaith · 14/04/2011 17:42

zzzzz, hes not been at school, 2 week bloody holiday, but am sure this is where hes picked up the swearing.

The toilet issue is something else waiting to be adressed as it has been ongoing for several years. He withholds and when he goes its HUGE so no wonder he doesnt want to go. Think this might be what makes him agitated, hence the agression.

His meltdown the other day was in the middle of a shopping centre, so am now thinking it was perhaps too busy and noisy ( he cannot communicate feelings)

Was really wondering if this is all ASD related? He has sensory issues like not wanting to go into buildings with high ceilings and also has to smell things constantly

OP posts:

zzzzz · 14/04/2011 18:58

This reply has been deleted

Message withdrawn at poster's request.

Triggles · 14/04/2011 19:08

DS2 gets really overstimulated in school - his 1:1 takes him out of class regularly throughout the day for short periods of time so he can work in a quiet relaxed environment and it gives him the chance to calm down. Once they started doing this, his behaviour started to even out a bit. He definitely gets more frantic and wild when around crowded, noisy, very stimulating environments. But I would definitely get ahold of CAMHS or paed and let them know of the change.

Original poster

keepingthefaith · 14/04/2011 19:35

Thanks for all the advice. He has just "gone" twice in his nappy pants and keeps saying sorry. No reason for this as I have never got upset with him.
He will now be a happier little boy till the cycle starts again.

I too have 5 children, ranging in age from 20 years, twins of 18 and another aged 15, but only my DS of 15 ever had behaviour problems (nothing like my youngest)

Incidentally, youngest aged 6, was also born with heart condition which was corrected at 10 days old, but was very unhappy baby for about a year, poor feeding,never slept through till aged 4 years. So his life so far has been difficult enough, but I seriously thought he would improve, so am now facing the prospect that he may not improve much at all.

Anyway, now going to take the bull by the horns and get him, and us, some help. Thanks all!

OP posts:

Toppy · 14/04/2011 20:02

Hi keepingthefaith - I really feel for you. What a bloody awful two week holiday so far. I have not got too much to offer in the way of advice on your DS's behavioural issues as my DS (3, ASD)is much younger but I wondered if the following publication might help. It is the elusive Poo Goes Home to Pooland (I'm not having you on!) written by a clinical psychologist and many people with children who withold swear that this little publication finally solved the issue. Got to be worth a try

zzzzz · 14/04/2011 21:07

This reply has been deleted

Message withdrawn at poster's request.

Original poster

keepingthefaith · 14/04/2011 23:00

Thanks once again for your replies.

Yes I am exhausted, but tomorrow is another day and like everyone else in our position I will keep on going hoping it will all come right in the end.

Oh, and thank heavens for MN, certainly keeps me going

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