Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

so angry i could cry (sorry need to rant) before i explode

15 replies

davidsotherhalf · 13/04/2011 10:40

how many times do i have to phone ss up to sort my address out? i moved house last june and changed addy, i have told them 17 times and went through complaints procedure about this. ss are still sending letters/reports etc to wrong addy. went to ss office yesterday with dd sw handed dd a report saying did mum let you read this? i said i hadn't received it. reply was we sent it to 47 (old addy) dd read the report and became suicidal as there is a lot of personal stuff about her on this report and 80% of it is wrong as other sw had guessed the assessment. now been told we can't change anything on report as the report was done months ago and we didn't correct anything in time. dd thinks everyone knows private things about her as any letters that have gone to old addy get sent on to us after they open and read them. dd is suicidal and refusing to go out the house (took me 2 years to get dd out the house last time she got this depressed)

OP posts:
Mamazonhereggsclucking · 13/04/2011 10:44

I would speak to a solicitor. That is a breach of confidentiality and so far out of order i just can't imagine how angry you must be.

your poor DD.

Triggles · 13/04/2011 12:33

I agree. Speak to a solicitor. This is well beyond reasonable now. Breach of confidentiality is a bit of a hot-button to agencies - but only if you actually push the button and tell them you're taking action. Then I imagine you'll see some sort of response.

Agnesdipesto · 13/04/2011 14:07

You can also complain to information commissioner about data breach and local Govt ombudsman about ss

RogerMelly · 13/04/2011 14:09

well this is ridicuklous but in the meantime can you get your post redirected?

davidsotherhalf · 14/04/2011 08:02

i got my post redirected for the first month it costs £20 a week, dd won't let me talk to solicitor as she's 17 she has to agree. dd thinks it will mean someone else knowing private things about her.dd now doesn't trust anyone as a lot of the things in report are bad and untrue as they have been done without sw seeing my dd. when i spoke to sw she said "i guessed what to put in assessment report as i don't have time to visit" one of the things that really got to my dd was a quote saying dd has schizophrinia and she hasn't she was diagnosed with asp/asd.......this remark was supposed to be made by camhs so i phoned camhs doctor and she went crazy saying she didn't even talk to sw or send her any letters etc. sw had just made this up.

OP posts:
bochead · 14/04/2011 08:39

I think you need to put in a formal complaint to the director of children's services - schizophrenia and asd are so different in so many respects as to make any care plan for one totally inappropriate for the other! This is actually very dangerous. I also thiink you need to copy the letter to the chairman of your NHS PCT and MP. This is professional incompetence.

purplerabbitofinle · 14/04/2011 08:56

This sounds scarily wrong. Would your daughter talk to a CAB advisor? She doesn't have to tell them anything except that these lies have been told about her and need correcting.

Heads should be rolling at SS, so you're doing the government a favour really by helping them cut costs Wink

davidsotherhalf · 14/04/2011 09:16

dd won't talk to anyone she keeps trying to s/h she won't go out the house because she thinks everyones seen this report and looking at her. we had to move county 2yrs ago just for me to get her to go out the house.

OP posts:
purplerabbitofinle · 14/04/2011 09:28

In 2 years (probably less) you will be kicked out into the big bad world of Adult Services. They have a rather different attitude to Children and Young People. They think it's cheaper to get the right provision for a person settled first time, even if it's expensive Hmm weirdos that think like normal people

For now, if you can, batten down the hatches and concentrate on helping your daughter regain her confidence and trust in the world. I don't know what her needs are generally, but it may be worth contacting Advocacy charities and organisations and see if there's someone who would be willing to "befriend" your daughter, under your supervision. Even just popping in for a coffee with you both every week or two.

I've guessing that CAMHS are worse that useless unless she'll go to them? Inpatient would just destroy her trust for you, which would be disastrous. Would MIND or one of the other MH charities be able to help? Again with the befriending. Being a person a little older but not as old as mum/dad is one of my key tricks into the kids trust as a youth worker Wink

davidsotherhalf · 14/04/2011 10:01

sorry but it was adult services that did this report and yes dd doesn't trust camhs anymore imo they are as much use as a chocolate teapot.

OP posts:
purplerabbitofinle · 14/04/2011 10:54

Oops sorry. Having gone from working with with young people to adult I've noticed a marked improvement in attitudes Sad

Hit up the charities there must be someone we can find for you!

davidsotherhalf · 14/04/2011 11:05

dd is in transition to adult services i have just took complaint to a level 2 then going to LGO don't know what more i can do but i'm having to do this without telling dd. i invited friend round for a coffee earlier and dd went to her room and hid she refuses to be in the same room as anyone else now as she don't trust anyone anymore ......i'm trying to get her to take dog out in the garden at the minute and she won't (can't) go through the door as the neighbours might see her will try and look for a charity to help thanks

OP posts:
zzzzz · 14/04/2011 11:21

This reply has been deleted

Message withdrawn at poster's request.

purplerabbitofinle · 14/04/2011 11:42

www.mandbf.org.uk/

www.suffolkbefriendingscheme.org.uk/

www.leedsmind.org.uk/view.aspx?id=94

www.autism.org.uk/Our-services/Residential-community-and-social-support/Social-support/Befriending.aspx

Obviously I don't know were you are, but hopfully the above links will give you a start Smile

davidsotherhalf · 15/04/2011 08:09

thanks purple

OP posts:
New posts on this thread. Refresh page