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DS has just had 1st paed appt - asked if we wanted to go down diagnostic route or wait 6 months - we said wait - bad idea??

26 replies

skidd · 05/04/2011 20:21

We had our appointment with the community paediatrician this morning. Lots of questions all relating to ASD (I think), and a few tests of language/comprehension etc for DS (age 3).

Then she just said, well we can go down the diagnostic route but I'm not sure that a label will benefit him at this stage. I said, so you mean you think he is on the autistic spectrum? And she said, well he has a lot of the behaviours but he is still very young so it is up to you whether you want to pursue a diagnosis Shock - I don't know what to think - is he or isn't he on the spectrum? We decided to wait (because she/we weren?t sure if he needed extra support atm) and will meet again in 6 months. In the meantime, she will write to his school and get a report from them. She has also asked me to fill in a questionnaire (SCQ)- which I scored (by looking at the closed middle bit Blush) and googled and it has him at exactly the cutoff for ASD (13/40). I went in there thinking maybe SPD or maybe I'm panicking over nothing - and came out with the possibility of an ASD diagnosis. My beautiful little boy Sad

So another 6 months of limbo I guess. I suppose his symptoms will either get better or worse in the next year of two and then we should know either way? I go from thinking he's fine and just shy/anxious to thinking he is definitely on the spectrum. I suppose one thing is that even if he is ASD it is definitely not severe.

But any advice on what to do now much appreciated. Were we foolish not to pursue a diagnosis immediately? I'm not convinced (and I guess the doctor wasn't either) that he would meet the criteria for a diagnosis, and I don?t know what support would help him at pre-school - his main difficulties there are interacting with other children - is there support available to help him with this? Am completely clueless and in shock.

Thank you

OP posts:
skidd · 11/04/2011 10:25

thanks lisa Smile

wow you must be exhausted with all that going on

DS has been great this weekend - maybe it's the sunshine but there has been a lot less Fireman Sam talk. He even forgot to take his figures to bed with him last night - another first Smile

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