Multi-agency meeting

[whoops]

Ds has some medical needs and also behavioral issues, we have had a bit of support from CAMHS but they haven't diagnosed anything but think his behavior is due to mine and ds's relationship due to him being prem etc.

We have a multi-agency meeting arranged for next week with CAMHS, the school and ds's consultant from the hospital.

Can anyone tell me what to expect, how much they are going to ask about home life and how much input I'll have?

Depending how confident you feel I think you will be able to have as much input as you want, to state your perception of your child's needs. I would ask the same question as justabout though....are you happy with this dx?

No I wasn't happy with this dx as I don't think it explains his behaviour at school. Yes he can play up more for me than his Dad but I think there is more to it.
After I was given this dx I ended up being signed off work for 2 weeks with stress as I took it as being my fault.
CAMHS brought to one of our meetings an aspergers questionnaire but expected me to fill it out there and then and need me to remember what he was like aged 4 or 5 (ds is 9) plus they were talking to me at the same time and I wasn't given the chance to show dh so he could have an input.

You could go armed with a list of his behaviours, when they occur, and if there was any obvious triggers. You could think back to his earlier years now when you are not rushed and again, write it down so it reads like a potted history.

It's not acceptable to expect you to give accurate answers to a questionnaire off the cuff.

You could also maybe ask school if they have been asked to bring anything to the meeting so you could maybe have the same info ready, but from his home-life perspective.

Good luck, it sounds as though they are keeping you out of the loop, be pushy and say how you feel.

clearly not acceptible to be expected to fill in that questionnaire, in that way with mo input from dh either. How pushy do you feel up to being? I think you may need more support too, how about parent partnership?

I will be bring up about the questionnaire at the meeting, also the head is going to be at the meeting and also ds's class teacher who is also the SENco (although I'm not sure she actually knew about the meeting until I asked if she was going to be there!)
I have had some support from a Parent Support Advisor who is going to be in the meeting as well as Parent Liaison from the school.
With ASD it was actually CAMHS that thought he had traits of that as well as some of ADHD although I've never thought he has ADHD anyway. I just feel that there isn't something right about his behaviors (search my name and a few threads in behaviour etc will appear!)

i would contact parent partnership asap they might be able to offer support and attend the meeting with you. parent partnership are great for helping you with your input at the meeting.

The meeting is on Tuesday so I don't know if there is time to get them involved?
I think also at the moment is so that everyone gets a picture of ds's medical needs as I don't think any of them know what is involved with the kidney disorder he has. His consultant is also worried that as ds gets older he is going to have issues taking his meds etc. He has been supportive of the behavior issues but we always end up back with the same CAMHS team that discharges us because they don't seem to find any issues despite getting 3 referrals to them!

phone parent partnership first thing monday morning, talk to them about meeting even if it just gets your head straight and arms you with questions for the meeting it will help.