working9while5
The first APD clinic in the UK was run by an SLT at Sheffield University as part of her NHS funded research, before the Medical Research Council won their government funding for their first 5 year APD research program in 2004. And we have some of the notes from one of her presentations on the APDUK web site.
When our youngest was officially diagnosed last year at GOSH, during his Speech and Language assessment there were also 3 trainee observers, and others SLTs participating in the assessment process. The UK APD Steering Committee has also expanded to include more SLT and Psychology participation.
Since the late 1990s there have been issues with many of the program providers for a wide range of reasons. Basically there are many causes of APD, when i first started to research APD to help my son, 1999, in the USA the leading researchers were talking about 4 models or subtypes of APD, some 12 years later the leading researchers have further broken that down to 12 or 13 different subtypes. The problem with these programs is that they are not able to identify which subgroups they can help, which subgroups they can not help, and which subgroups they may harm.
All APDs have different subtypes of APD, different severities, and more importantly different alternative cognitive skills they have developed to work around their deficits, from the time onset of APD, which for many is from birth. All of my three sons have some degree of APD, as do my partner and I so we are a family of 5 APDs. We all have different degrees of APD, and different ways of coping with it. Most of the programs only provide a one form of support or set of coping strategies , and only at a very basic level. So you need to identify the coping strategies each APD has already developed, and then try to identify a program which can help develop those same coping strategies. Because after the program has been completed each APD has to revet back to their own coping strategy development as they face new life challenges and they need to develop new or adapt existing coping strategies on a daily basis.
So unless the coping strategies included in any program match the existing and future coping strategies each APD is cognitively able to develop, it will be a waste of money, and it could actually cause some psychological harm. Back in the 1990s one program was marketed as the cure for APD, which research has long since been disproved. As you say ASHA is not a fan of AIT, and a couple of years back banned its members from using AIT. (I was too busy doing other things to discover the actual reasons)
I have tried one of the programs which are frequently recommended, and has proved to provide some help for many. We had the three members of the family who were diagnosed as having APD (at that time) using the program, one complained ear pain, the teenager lost interest, and it began to muck up my existing coping strategies. So we stopped using the program. Another family we know, paid some £2000 plus for another program and their child gained no benefit at all.
This why APDUK does not promote or endorse any program which may help some who have APD. And why we talk about identifying and developing the alternative cognitive skills each APD will have to work around their own specific APD problems.
The biggest language problem that APDs have is not being able to process the gaps between sounds, especially the gaps between sounds that can make up words, or even between words when some one is talking very fast. This tends to mean that we have some form of speech development delay, as we are only able to reproduce the sound of the whole word. Most APDs are natural Visual learners or become self taught visual learners to work around their auditory deficits. So we tend to think in pictures, and not words. We use lipreading, and reading body language to help fill in the auditory processing gaps we experience when listening to others. APDs will have a poor auditory memory, and when listening, or talking will have poor working memories for other information processing tasks, which means we can temporarily appear to be "Aspergerish"
At some point in our development we develop our long term memories to act like video recorders for conversations, classes, lectures etc, and then play back the long term memory to help us understand what was said at some point in the future, and this also means we can have the long term memory of an elephant, and can recall lots of sometimes useless information. When an APD has developed this ability then they need to have some quiet time each day to allow this recall to happen (i can spend hours in the bath just recalling the events of the day, or trying to anticipate what will happen tomorrow.)
I hope this provides some help, you can always contact me via the APDUK help line if you have any questions