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How to present ds 'case' for

5 replies

Sops · 26/03/2011 08:10

I have concerns about ds, (4.11) as do school.
Dh and I both have very strong suspicion that it is Pathological Demand Avoidance.
At teacher's suggestion, we've had a meeting with class teacher, head and senco. Teacher supportive, but we think senco thinks we've made up PDA and are neurotic parents.
They asked me to see school nurse, she has referred me to family steps and community paed.

My dilemma now is do when I get to next step do I say I think it's PDA in the hope of getting someone who will take our concerns seriously or will that run the risk of having another experience like the senco and be fobbed off?
Also, have 2nd appt with GP on Monday, what should I say to get taken seriously?

OP posts:
EllenJane1 · 26/03/2011 10:24

Why not? I'm sure they'll want to make up their own minds, but they'll want to take a history from you. So once you've described all your concerns and answered all their questions you can ask what they think it might be, could it be PDA as he seems to tick a lot of boxes. The paed will probably not want to commit until she/he has observed your DS a few times. But no harm putting the idea forward. Might make them look at it as a possibility sooner rather than later.

If you are already referred to the community paed (is she/he a developmental specialist?) I'm not sure what seeing the GP will accomplish? The GP will probably have never heard of PDA and will only have a sketchy knowledge of more common developmental disorders such as ASD. Unless you have any other medical concerns?

Take a list of concerns with you and developmental milestones (and your child health record) because it's so easy to forget something.

Good luck!

moondog · 26/03/2011 10:41

What yuo call it is largely irrelevant.
All that matters is how you deal with it.

IndigoBell · 26/03/2011 13:25

Print off a PDA checklist from the web and take that with you explaining why you feel it is that.

Sops · 26/03/2011 14:18

I took a print out for the senco but she didn't even look at it and was rather dismissive of our thoughts. I was a bit bothered that if I mentioned it again other professionals might be equally dismissive.
The GP appt is so that any other general health issues can be crossed off the list as playing a part in the behaviour.
I don't know if a community paed is a developmental specialist, not sure if that will be just a stepping stone onto further professionals for assessment if required or whether community paed would do assessment him/herself- anybody know?

OP posts:
IndigoBell · 26/03/2011 15:19

I think a community paed will just refer you on to the child development paed....

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