How will he be?!

[samira837]

Hi can anyone that have a child with SLI or ASD plz tell me how they are doing now?! My ds is 3 and they think that he has one ore both off this dx just really need to know what to expect as he gets older

thx xx

How long is a piece of string? I think a lot depends on the severity of the sli /asd. I would say it would be really hard to answer that question without knowing much more about your son and even then there are no guarentes'. I think theres a fair chance that you will end up 'fighting his corner' for him, more so thatn with a nt child at least.

Sorry that was probably not terribly helpful, didn't mean it to come accross like that but if you read around on here a bit you will see there are many children with diagnosis' of sli/asd and they are all different. For example there are 2 extended members of our family who are on the spectrum, yet both will go on an live largly independant lives, notwithstanding social difficulties etc. Yet my brother who has an asd will never live independently.

It's so hard to say Samira. They can vary so much. My DS has an ASD DX and is in mainstream school with average intelligence and copes fairly well in primary. The next big step for him is secondary. He talks but we don't get a lot of conversation that isn't linked to his latest obsession. He's happy enough but still has daily tantrums. He doesn't do friends but his classmates are a tolerant bunch. He has 1 to 1 support and a statement of SEN.

I tend not to look too far ahead, just up to the next big thing so we are all well prepared. I'm sure others will have wise words for you.

Hi, dd2 was diagnosed at the age of 3, she was non-verbal and non responsive, she's now 5 and talking (on her terms) but still behind, she can read, write and type, she now answers questions and asks them, her eye contact is improving and she uses imaginitive play. She still has a lot of sensory problems that we are working on but we are really please with how she's doing, 2 years ago i thought she would never talk and would have to go to a sn school (she's at main streem and doing well).

Alot of things have improved for her but with it other problems have emerged (more sensory and more meltdowns).

My DS2 was dx at 3 with SLD, later with ASD.... non verbal at 4, ..
now nearly 14, talks non stop (but obsessional..it's a one way conversation)..been in SN school since he was 4, now integrating into a MLD unit...this year..

Progress has never stopped. He will never be 'typical' , we have had many surprised, good and bad, along the way, but he is always always amazing...

At 3 the thought of him never being independent terrified me.. at 14 I accept there are some things he will never be able to do, but he has come so far in so many ways....

Hi Samira, think its important to remember that each child is an individual and there are no 2 the same. Hope you get definite dx so that you can get all the support and help you need that will help your ds. My ds is 10 now dx at 5 he has severe autism and doesnt talk at all (not a single word, though hopefully will soon be using PECS which is being worked on in his special school). As my ds reached all his early milestones and regressed then theres no way of telling how he will be in future. Never say Never :)

Hi thx everyone for all the messages it is sooo right when u say "there are no 2 the same" i have 2 ds my 1ds and his brother are sooo diffrent somtimes i think that they are not brothers!!

The thing with my ds is that u cant really tell that there is enything "wrong" with him when ppl are talking to him and he dose not respond they allways think that "he dosent want to" talk to me! Somtimes i have o tell them he dose not talk!!
Anyways thx everyone will let u know what happens

xx
S

Lots of good advice here so i'm just going to add that he will probably be amazing and the best thing that ever happened to you! SN kids have so much to teach us, in terms of tolerance, acceptance, learning to try different approaches, broadening our horizons, learning to think laterally, literally and which way that works, on the spot, over and over again! Dont ever believe that their future is set in stone, things you thought would be acheived wont, and things you never expected will. You'll reach all time lows, but the way back up is amazing. I wouldnt change my DD for the world, though I'm always trying to improve things for her, she brings joy, love, happiness and understanding into SO many peoples lives, and she really does make a difference!
Of course I love my NT ds just as much and am just as fiercely proud of him; I think because the pain has been greater with dd the gain has too.

Wish there was a like button here same as fb. Agree totally with AlysWho :)

Well, DS (ASD, SLD, dyspraxic, dyslexic) is school prefect and plays national rugby. I'm the same sort of disability profile and set up my own business and have a lovely ASD dh and friends and have a good life (er, when I'm not on chemotherapy which has naff all to do with the disabilities!). So that's what can happen in the future from children with fairly profound autistic behaviour etc. You can never tell how we'll end up.