DLA I feel cynical

[ethel1]

After 6 hours of DLA form filling have now reached night time section.
Its very importent that I get this right
because even thought my dd is severely mentaly

disabled if I don't get the higher rate I'll lose the car.and I can't afford another.
I can't help but wonder what would happen if dd's DLA goes down, and I said "shes 18 now so as you you don't want to pay me approx £5000
The goverment should look after her for £100,000
a year in a home,
And I would have a normal life doing what I liked with no hair pulling, pinching, biting,pad changeing,messy house,etc .
But could I really put her in a home yet,
probably not, in 5yrs time prehaps

I best hope that I keep the higher rate!

i really feel for you , impossible situation isnt it unthinkable that you have to be put in the position in a few years and ridiculous that for the sake of a few grand you could be carless when you are exactly the sort of person /family DLA is intended to help and ironic that like you say they would have to fork out 100 grand if DD was in a home of course if for any reason you dont (and i think you will still get the higher rate) get the HR you will of course ask first for recosideration and then tribunial wont you all i can say is with allyou have to struggle with this shouldnt even be something you have to give a second thought to , this government must be making Horlics a lot of money as the rest of us arnt good luck let us know how it goes (((hugs)))

ethel1 I have to be honest and say that you just can't think of it like that. If you need higher rate because your daughter has night needs, invest your energy in that. Your post makes you sound like you are more interested in the money, which I am sure is not true.

Hi Lougle,yes your right it does make me sound money grabbing,but I am self employed and due to the care needs of dd the hours i can work are limited,so my income is pathetic,and the DLA makes life bearable.
I think my problem is in the last 6 weeks dd has had 2x 4day breaks and I've had a taste of real life.
shes back today and I love her dearly but oh boy is it hard work
I suppose its all the gov cut backs and I have heard of people having the rate lowerered because at16 these
kids suddenly become ok
Also 1 question really gets to me how far can you walk without feeling pain, well dd can walk with an unusual gait but sits down when feels like it, the question is for people with phyical dif not severe learning probs.
SOmeone in a wheelchair would automatically get the higer rate and if there mind is ok nowadays this would not stop them going out.
I have a letter now saying she has an IQ of 20
and we are boardring on profound L D in the olden
days this would ad been classed as idiot I'm glad thats changed. Sorry just thinking aloud !

Well, the question doesn't ask how far can you walk without pain, it asks how far the claimant can walk without severe discomfort. That isn't pain.

If your DD sits down regularly, then you can presume that she must be in discomfort, surely? In which case, you put the distance that she walks before sitting down.

If your DD needs restraint to enable her to walk, then you could argue that she is unable to walk independently (bear in mind that restraint includes a hand on her arm to guide her).

Yes your right it could be severe discomfort.I just counted that as pain.
And she certainly can't go without physical restraint,
We have had 'fights' on the kerbside because she wants to cross a road with cars coming,we end up satdown with my legs crossed over hers and my arms round her chest ,it does get a lot of odd looks.

Once this forms done I can back to my positive 'sunny'
outlook ,with a bit of grumpy old woman thrown in,
not long till the age with a 5 in it appears.
Oh that sounds soooo old !

I can understand your cynicism, but I agree with Lougle that we need to think of DLA and other expenses in terms of meeting needs and not as cash. I don't like the way that residential care is described sometimes as a threat for the government for not providing families with enough support.

Some children do end up in residential care and that is because their needs are severe; it has happened to a friend's DD. She certainly isn't triumphant at gaining all that government funding, she would much rather have her child at home but the sevee needs and family circumstances have meant it's impossible.