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Here are some suggested organisations that offer expert advice on special needs.

advise needed is this aspergers?

8 replies

angelPeacock · 07/03/2011 20:22

hi....have to say that i havnt posted here before, and have only just registered today, though i have lurked reading for a while.

i have a 7 year old son who has always had trouble. He was born 4 weeks early, had jaundice, became undernourished, had undiagnosed fits which just stopped and never looked into. he had bad reflux up till he was approx 12MO. then dx with congenital Nystagmus but 20/20 vision. then at 2 we started the path of hearing tests and has since had 3 lots of grommets.

becuase of all this, his behaviour was always "put down" to somthing else in his little life, like his frustration on not being able to hear, or his lack of co-ordiation becuase of his vision.

over the last 12 months i have been trying to get people to listen to me as i believe that most of the things that were brushed aside we actually symptoms of aspergers.

my husbands brother (my sons uncle) has aspergers, and my mother in law can see the similarities. I have always prided myself in being able to know when something is not right with him, as its always been me who has instigated appointments and requested investigations, and my "gut" is telling me this time that his behaviour is not "normal" for a 7 year old.

here are some of his traits....do they seem familiar to anyone?

*VERY figity, better if he has something he wants, to figit with in his hands.
*will bounce up and down on the edge of the couch even though he knows i will tell him off.....other things happen like this like he "cant help himself"
*his teacher has described him with the words "if i could let him out of the classroom for 10 mins to run it all off he would calm down again"
*he will sit quietly if its something he wants to watch on telly, but as soon as he decides he doesnt want to watch anymore he will try to turn over even if others are watching
*doesnt like crowds / loud noise (when at school disco lately he didnt want to let go of me, eventually went to the senco, and told me after the party that "sitting watching a bag was way more fun than dancing")
*craves routien, tantrums easy if changes are made without notice, he needs his day planned out in his head, can be very dificult to calm down.
*doesnt like contact play
*all emotions seem exagerated almost like he doesnt understand how to show them propperly, and doesnt understand the more compex emotions of others...does know happy/sad but not worried/confused
*VERY clumsy, cant ride bike/catch ball/kick ball. last week eventually did roley-poley
*can be awake till 11pm one night, but asleep right away at 7.30 the next
*short attention span but can concentrate on a single thing for hours
*HUGE appetite-almost like he has no off switch
*exceptional memory for songs/theme tunes, and also for details in events months ago that i didnt even notice.
*clicks fingers/tongue/whistles
*hasnt grown out of things other boys his age have such as fireman sam

sorry if this is another post like many others, or if i seem dumb. i just dont seem to be getting much support from family (apart from hubby, and slightly from mother in law)
thanks in advance xxxx

OP posts:
Thecarrotcake · 07/03/2011 20:36

Your list sounds enough to warrent popping to the GP and asking for a referal to a developmental peadiatrian.

Might be useful to take your list and a diary of events along with you.

EllenJane1 · 07/03/2011 20:44

Angel, some of that list of behaviours do sound familiar and my DS2 has ASD. But they could mean other things such as dyspraxia or ADHD or just caused by his hearing problems. I'm not a paed, though, just a parent. If you have concerns you really need to get a referral from your GP to a developmental paed.

Did your DS have any problems with communication? Not just talking but understanding body language or tone of voice. Did he play with toys in a strange way, lacking imaginative play? Sensory issues like finding the disco noisy and finding emotions hard to understand do sound a bit spectrumy. Others on here will have more knowledge but the best advice is to trust your instincts and get your doubts investigated. HTH

EllenJane1 · 07/03/2011 20:46

Cross posted with carrot cake. Sorry, same advice!

angelPeacock · 07/03/2011 21:01

thanks for the replies, ellenjane i will search for that post now thanks.

i have a pead app on thursday, the last app he said that he wanted to wait to see how he was, that was november. i have also been to the tripple p programme for his outbursts, and they have reduced. he can still be "violent" but its like he lacks the understanding that he shouldnt do it, at least at the time.

thankyou for the advice and agreeing that it at least needs looking at, makes me feel less like a "paranoid parent".

thanks x

OP posts:
LIZS · 07/03/2011 21:05

ds does a few of those things and has been described as dyspraxic with AS traits, so definitely worth following up.

angelPeacock · 07/03/2011 21:08

sorry, mis read..hahahaha having one of them days lol...
LIZS...thanks for that, i had wondered about the dispraxic dx, with his clumsyness, i will add that into the questions i have for pead xxx

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mumnjohn · 08/03/2011 20:15

HELLO
that sounds like my son.
he is seeing the dr to be tested for dyspraxia.

my son is 9 years old.
he has had a statement of special needs since he was 6 years old.

he is a lovely boy and i love him to bits.

angelPeacock · 08/03/2011 21:24

hi mumnjohn.

what is he statemented for if you dont mind me asking. i meen, the "condition" behind the statement...argh i cant word things today. lol.

my son is very loving (half the time) and everyone coments on his manners (untill he has an ab-dab). but i do find that most kids with extra needs tend to be a little more loving (i know its not always the case, but in those who i have had the pleasure to be friends with).

xx

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