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SN children

Here are some suggested organisations that offer expert advice on special needs.

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Original poster

I have just about had e-bloody-nough.

17 replies

NatalieJane · 07/03/2011 09:33

Cornered SENCo about her obs, and she tells me "I didn't really write everything down, it was more just little notes to remind me what to say to you"

I give up, really, I am not even bothering with them any more, they are making it quite clear they have no intention of helping my son, and there is sod all I can do to make them. Am going to push on with the SA and take everything above her head.

OP posts:

bigcar · 07/03/2011 09:38

sounds like a good plan! Everything that goes on at dd3s school gets documented, sometimes I think they go too far that way and worry more about the paperwork than the dcs and that's ms nursery and reception so working to the same early years foundation stage that they should be using. Keep plodding on, it'll be worth it all eventually.

wendihouse22 · 07/03/2011 10:01

That sounds really haphazard....how does she know that she won't need to recall ALL of that information, if required in the future?

They will need to come up with more than a few notes in order to support you in a Statement application.

She (SENCO) sounds like a waste of time to me!!

Original poster

NatalieJane · 07/03/2011 10:08

Oh she won't support the statement, she sent a report for DLA saying he is a normal 4 year old who behaves like any other 4 year old, she still says she can see no additional needs depsite the fact that he is either seeing or been referred to: Paed, SALT, OT, CAMHS, Physio, and hearing/sight tests.

She is an absolute waste of space. But, the one thing she is in a round about way helping with, for all of her 'I don't see any additional needs' speeches, she has never once actually produced a detailed observation of him, so how can she back up what she's saying? I have now (apparently) seen all files held on him by the nursery, there is no mention of his sleep issues (which has affected his attendance) no mention of our worries about him, no mention of what they have done to help him, no targets, they've not even got correct information recorded about how many brother's he has, or their names, in the 'my family' part of his notes! So, when she doesn't back up the SA, at least we can have a good shot at discrediting her POV.

OP posts:

starterfor10 · 07/03/2011 10:48

What are his needs then? Sorry if you have put them on another thread.

bettyboop63 · 07/03/2011 11:01

oooh they make me so anry how stupid is that and i bet she was all smiles they sound useless , are you waiting on the statement or thinking of moving him b4 that, as it takes quite a while, and thats when the school is co-operating

Original poster

NatalieJane · 07/03/2011 11:30

Startedfor10, sorry was so cross before, I should have detailed a bit more.

We are querying ASD at the moment, was looking quite likely until he came on socially all of a sudden. He is lacking self care skills, he has a diagnosed speech disorder, sensory issues, hypo-tonic limbs, huge amounts of anxiety about nothing obvious to anyone else, he has something going on with his sleep, has no preference re. left/right hand, loads more that I can't remember off the top of my head! Tell you what though, he is a great little boy, bless him :)

Betty, yes she said it quite joyfully, as if we would just say OK and drop it, dropping it is not going to happen! TBH re. the statement, he's due to start school in September, he can stay in nursery till December (when he's 5) and even if I had to HE him for a while until the statement comes through properly that's fine with me. I have considered changing his nursery everyday for the last few weeks, but he enjoys it there, he's got a great little friend who he loves to bits, and he can't handle a change in which route we take to get to the shops, it doesn't seem fair on him to move him when he is settled. I have the EP's and the SEN manager's at the LEA backing for a SA, so I hope it will lead to a statement. Hopefully, at some point we'll get him in a school who recognise his needs and acts on them, if we don't, well, we've got this fight for the rest of his life really.

OP posts:

bochead · 07/03/2011 13:28

Actually my senco was so hopeless it really helped me get agreement from the lea to assess my son for a statement. They very much took the attitidue their mst be an issue for him to need to see all these specialists? Normally their default is to refuse to assess when peeps first ask.

In a twisted way she could be doing you a favour lol!

Original poster

NatalieJane · 07/03/2011 19:29

That's what I was trying to say up there somewhere Bochead!

She is kind of walking her own plank!

OP posts:

StarlightMcKenzie · 07/03/2011 19:51

This reply has been deleted

Message withdrawn

Original poster

NatalieJane · 07/03/2011 22:28

I know, cold light of day and all that...

Letter is already done.

I suppose what I mean is that I give up trying to 'prove' to her that he has these issues, she is never going to see/accept/admit it, so what's the point?

OP posts:

Original poster

NatalieJane · 08/03/2011 09:30

Bloody hell Star, you had me re-writing my letter last night, you put it so much more, erm... pin pointed than I did!

Ta da:

Following our telephone conversation today I am writing to you to ask you to clarify a few things.

As I understand it, you have not kept any records of George?s issues or observations that you have carried out on him, but have instead only made a subjective assessment with no accountability to anyone.

Also the fact that you ?are there all day with all of the children? there meaning nursery, are you implying that you haven?t carried out an observation of George over a full morning session, as you are too busy with the other children?

I assume you have been too busy with all of the other children to either acknowledge or reply to my previous letters re. George? Or am I to assume all of my understandings raised in the previous letters are correct?

Please let me know in writing if I have misunderstood anything.

I have a very pin pointed paragraph to add to the end of the letter, but I think she'd probably have me arrested! :o

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wendihouse22 · 08/03/2011 12:14

What is your son's actual diagnosis or have I missed a bit? Sorry, could be me being dozy!

Original poster

NatalieJane · 08/03/2011 12:17

No, you've not missed a bit Wendi, we don't have a diagnosis, according to the Paed he has a working diagnosis, don't know if that means anything to anyone, I took it to mean that they are working towards a diagnosis?

At the moment, aside from possibly ASD, we have no clue what is going on.

OP posts:

TheMaleyDale · 08/03/2011 14:09

A working diagnosis means that they are certain he has ASD, but haven't completed the 'official' tests.

Make sure you have the working diagnosis written down.

TheMaleyDale · 08/03/2011 14:10

You'll get good at this game. It is better that you practice on an incompetent that you're not going to see again very soon.

Original poster

NatalieJane · 08/03/2011 14:24

Oh.

We are seeing the Paed again on Friday so will double check and ask her to write it down. She led us to believe she didn't have anything specific in mind yet and when all of the people he has been referred to have seen him and done their reports then we'll get a DX.

She said "At the moment, we have a working diagnosis, once we've got all the reports together, we'll have a diagnosis then"

I had tried to pin her down to giving us a clue at what we could be looking at (i.e. if it's not ASD), but she seemed to give us nothing.

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wendihouse22 · 08/03/2011 16:42

My son was diagnosed aged 4. At that point, the "system" kicked in.

Diagnosis is key. My paediatrician (6 yrs ago) felt that she was telling me something that would upset/shock me when she finally gave her dx. She was quite wrong. Whilst I didn't want to label my son I did feel a huge relief that there WAS a condition, it wasn't (as suggested by my now ex-husband) my mothering skills and I could then go forward with this "label" to achieve the help he needed.

Push for this asap. If they're pretty much sure, they should be able to make that call.

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