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Odd eye problem - sensory or something else?

26 replies

moosemama · 02/03/2011 20:01

We are in the process of getting ds1's visual motor issues assessed, having had his vision checked by a standard optician and finding out that he has excellent 'vision' but very poor convergence and motor control.

We were just about to book him in at Aston University's Vision Science department, (where they can do a lot more thorough checks and assess for Irlens among other things) when I spoke to ds2's consultant optician at the hospital's eye clinic yesterday and just happened to mention ds1. She told me they have an orthoptist (or was it opthamologist?) that is trained to check out motor/behavioural opti stuff and she has taken his name and details so that we can be seen quickly as soon as the GP refers. The advantage of this is that, obviously these checks can be done on the NHS for free and they are then able to refer on to the most appropriate people for further more in-depth testing if necessary. Its still possible that we will have to pay somewhere along the line, but probably worth trying the NHS route in the first instance.

In the meantime, he seems to be struggling with his eyes. Not his sight, he says he can see fine. He has a sort of tic where he scrunches up his eyes anyway and just recently he seems to be doing it a lot more and at the same time looking as if its really bothering him. Normally he just does the scrunching without even realising he's doing it, so this is definitely different.

He says his eyes don't feel itchy or sore - they feel like they are detached, but he can still see. Confused

That's all I can get out of him about it. He says its really hard to explain how they feel, they don't hurt or feel poorly, but he thinks its getting worse Sad and the only way he can describe the feeling is that his eyes feel disconnected, but he can still see.

So, I'm really confused and don't know what to think. Last time he said this (before christmas) I took him to the GP to get his eyes checked, as I thought he must have an infection and I know he's hopeless at recognising when he's ill. The GP checked his eyes and said they were all clear.

Could it be sensory do you think? Or something more fundamental, like the way his brain is processing images?

I do know that he has a fairly significant visual processing delay (based on his WISC IV results) and wonder if he's actually starting to notice that somehow.

Does anyone have any experience of something similar to this, or have any ideas as to what it might be and how we can help him?

Obviously we will now be pushing to get him seen asap, but even if the appointment's rushed through its going to be at least a couple of weeks and he seems to be really struggling. Sad

OP posts:
IndigoBell · 07/03/2011 11:16

Vision therapy has dramatically improved DDs vision. (But her problems were quite mild to start with.) I would have thought that it would help with convergence problems. (Which I'm guessing is a muscle problem, which is what vision therapy works on)

And the Lightwave Simulation has improved DSs vision a bit (although def not cured it).

The orhoptist is the right person to see...

Overlays have been recommended for DS but he refuses to use them. However his computer always has a purple background, which I know does help him. (Teacher uses purple on the class whiteboard as well - bless him)

Overlays have also been recommended for DD and she loves them. So we're back to the behaviour optometrist for a proper colour thingy test to see if she really does need overlays or tinted glasses - or nothing :)

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