Ds has now been diagnosed with Tourettes. I feel sad for him.

[northernmonkey]

I dont know why i'm posting really, i just felt a little sad when i saw it in writing :(
He had a dx of ADHD 4years ago and has been on medication since. Before we got the dx, we noticed he had an awful lot of tics. These over the years have got worse.
Over the last year or so he's started more throat and nose clearing, whistling and odd noises. After speaking with his psychiatric doctor she decided that its now time for a diagnosis of tourette's.
I do sometimes feel like i've let him down. I know i haven't though.
He just seems to struggle as it is with his ADHD and now this :(
He's got very hyper and violent again at the moment and we cant increase his meds because they make the tourette's symptoms worse :(

Like i said i dont know why i'm posting, just wanted to get it off my chest

Hi NM

sorry you are feeling sad. it is horrible when you add another dx to the one(s) you have already. The complications with the medication sound really difficult as well.
You've probably thought about this so apologies if these questions are just irritating

Is medication the only thing that helps the ADHD?
Can you ask the doctor if there is other medication that wouldn't aggravate the tourettes
Would it be better to medicate adhd symptoms even if tourettes gets worse?

I'm glad you know you haven't let your ds down because you so obviously haven't.

Of course you haven't let you DS down. You are doing everything in your power to help him and love him unconditionally. That's what a fab mummy does. He's a lucky boy to have you.

It's hard to see any of this stuff written down. We all know how hard it is. It's a real kick in the teeth. Post when you need to. There's no judging here.

If I didn't come here I would feel so isolated and angry.

I know absolutely nothing about ADHD and Tourettes but someone else will be along who will be of more use than me.

Sending hugs. Have a

think its perfectly ok to feel sad when getting another dx. I did when we got the adhd dx (already had hfa) didn't realise it at the time but was horrible to dp for a couple of months (although, not as horrible as when we got the asd dx!)and like spinkle if I didn't come here I would feel very alone with it all.

I also think seeing it in writing makes it real, anything in writing is horrible.

Your ds is still your lovely ds and he's lucky to have a mum who is so proactive and in tune with him; sending a hug (can't do the hot beverage emoticon, but perhaps the wine glass would be more appropriate now anyway!) x

Thankyou all for your replies :)

Yes my ds has a snorting tic and facial as well, some days more than others.

Hopefully your ds' school will be less punitive (poss 2 strong a word?) now that he has the dx and can help in building his self esteem - not sure what age your ds is?

He's 10. Year 5going into y6.
School have been amazing with him actually so thats good.
He's only been there a year. His last school however...well we'll not go there Just glad we moved when we did

I know what you mean about some days been better than others. I depends on how he's feeling too

Can understand you feeling sad. If you havent already head of them look at this site www.tourettes-action.org.uk/
They are very good and they helpline is very useful.
Ds2 has not actually been diagnosed yet, still being assessed. But it is very evident he has it. It also clear something else going on but again they have not actually diagnosed yet. They told me last week they think he on autistic scale so we are now waiting for ados
How old is he?

Sorry cross post, he 10

i just wanted to let you know same as everyone here its NOT yr fault youve done nothing wrong and not let your DS down its awful when we get these DX partly because we thing why my DC and because wewant them to be NT in the back of our minds and we want the best for them and when they get a DX and then further DX i think were sad becuse as mums it feels like weve failed and then all the worries of what will become of them will they have a husband wife kids a job ect ect basically will/can they be happy, nothing anyone can say will make you feel better you need to grieve again but one things for sure he is LUCKY he has a mum who loves and cares for him like you so you will be there for him and thats special