Arrrggghhh

[hanaka88]

First of all sorry I haven't been on much with teAching n looking after little hurricane it's hard to find the time. We are still awaiting diagnoses either neuro degenerate disorder or autism but his MRI results are taking forever. It's just recently I have a whole host of new problems, headbanging, soiling himself, the inability to walk properly again after breaking his foot, total melt downs every time we try to go anywhere. DrAwing on Walls Not sleeping.etc etc lol

how do u all deal with this daily?? I could do it if I actually had any understanding from family and if people didn't stare at him and shake their heads. I miss who he used to be before he regressed but I love who he is now

I just don't know how to cope anymore

Didn't want your post to go unanswered.
Don't have much advice, except- are you able to get respite? We get 200 hrs a year respite for DS from our local children's hospice, and it's invaluable.

When people stare at my Ds, I just say 'at least he's got an excuse- he's got sn, but you're just ignorant'.

YOu are an amazing lady to be a teacher and raise asn child. I'm a teacher too, and know how hard it is to keep all balls juggling in the air at the same time.

Go easy on yourself, you're doing brilliantly.

Thanks. Wow ur a teacher too! It's so hard but it keeps my mind off the issues for a day. Do u think it's ok to put ds back in a buggy while we are. Out? He is 4 but it's getting hard to transport him when he has a melt down. Which is more often then not

I think it's fine to put him in a buggy when you're out, we had a baby jogger which was fab and very manovreable when DS was a large 4 1/2 year old. He loved the security of it.

We have a big 3 wheeler with bike wheels. It's fab, though I still get the 'he's too big fora buggy' stares lol. I wanna poke the starers in the eyes tbh

We still use a buggy for dd2 (almost 5), it just makes life easier as she has a meltdown whenever she see's something she wants or she refusses to walk.

I'm glad others do too. We find it hard walking especially of we are parked far away

Sympathies, my dd is 4.4 and regressed at 2.10, we went through all the neuro tests too. She has a chromosome deletion it turns out. Is a very very hard process though, I know.

DS has a maclaren major which I use for visits to the town centre, after getting tired of the judgey-pants staring I wrote on the front of the footplate 'not all disabilities are visible'. Seems to have done the trick!

How you teach and care for your DS I don't know, although I can see what you mean about it being a time frame where you think to think of other things. I used to childmind but it proved too much for him and for me!

Any chance of educating your relatives? Some I have managed this with, others I now limit contact with. A child with SN is a great way to screen the people in your life, it's hard enough without ignorance ad negativity around you.

Thanks for your replies. I end up shouting after people at the moment they soon run off. Today it was 'do you always shake your head at disabled children you horrible man?' lol.as for screening I don't talk to half my family now after my auntie blamed my son for hers hurting him saying it was his own fault coz he was horrible... She was drunk n in no fit state to even look after her own child, grrr lol. My dad recently told ds to colour more neatly but a quick 'he can't yet dad' was all it took, some people are just more accepting n nicer than others