im feeling very sorry for myself at the moment so please forgive the ramble-i just need to get this off my chest.
As a few of you may know dd was in hospital for the best part of a week with convulsions and they have picked up on her developent delay and told us she has something wrong with her legs, they have taken countless blood tests but wont tell us what they think.
On friday we took dd back to the hospital for a scan on her kidneys, they made her lie on her chest, she has NEVER EVER lay on her front and screams if you try and make her,so she was lay on the bed screaming, im trying to tell them theres something wrong with her legs and this is making it worse but they said they needed to scan her from the back.
She wont hardly eat anything, is just drinking b/milk which involves feeding almost hourly through the night at the moment, im shattered have no energy,ds has started playing up because we havent been keeping to the "schedule" us and the psychologist devised for him (ASD).
and to top it all we got a letter from hospital saying she is to have MORE blood tests and yesterday the dreaded letter from the DLA came to say she can only have lower rate despite us asking for a reconsideration
Someone tell me to shut up and start feeling positive cos i cant see ANY light at the end of the tunnel at the moment
Right Rant over !