Just let me have my scream

[DerangedSibyl]

Ds1 - age 7 - diagnosis - Autisic Spectrum Disorder, ADHD, Sensory processing Disorder

I have appointments weekly. how the hell I am supposed to get a job between the OT, the school meetings, the ADHD nurse and the ASD nurse is beyond me. And I don't think they are making any difference after the first one of each.

And something always goes wrong.

Last week, the ADHD nurse was supposed to prescribe ds1's liquid melatonin. he prescribed a particular brand. Not one pharmacy in my town stocks it. I ring him - explain situation. He insists that he has to prescribe this one (KIdMel) and cannot prescribe the one Boots already stocks (KidNaps). I tell him that his budget problems are not my son's issue. Please prescribe an appropriate medication. He prescribes apprpriate medication and posts prescription.

I take prescription to Boots - "Oh, we haven't got any in, we'#ll have to order it - come back in a week"

So... ds1 now has his melatonin.

Another appointment to see ADHD nurse today - apparently this appointment was to discuss further medicating my son.

I don't recall making an appointment for this.

Nevertheless, I have walked out of that apointment with a prescription for methylphenidate in my hand - googling this informs me that he has, in fact, prescribed ritilin, a drug that I very clearly told the last nurse I didn't want my son to take.

How lucky that I have internet access! How lucky that I have both the brains and the cynicism required to wonder what on earth this wonder drug could be! How lucky I was to find a list of side effects as long as my fucking arm that the nurse had not informed me of! And how very fortunate that the nurse filled the prescription form wrong again, causing all the pharmacists to refuse to prescribe it, forcing me to wait, and develope some doubts, and google it.

:(

Scream away. Sounds totally awful.

i'm sorry. i too feel similar anguish, wasted time.

When you've finished screaming - complain. You should have been made aware of what drug they were offering and the side effects. The nurse should have also filled out the prescription properly.
It would make you sick to the stomach if you knew how many errors that are on prescriptions that get picked up by pharmacists that could have been potentially fatal (info from a friend who is a pharmacist!)

I had a very very long talk with my boyfriend last night.

I talked, he listened.

On the grounds of family-wide depression (which wasn't asked about), and a complete lack of health monitering offered by the nurse (no heart rate or blood pressure checks done), I won't be giving the medication.

His school are managing. He's had one violent incident in three and abhalf years, triggered by another child being violent towards him (this is backed by teachers, not mummygoggles) and I do not feel a need for this yet.

weird int it my GP flatly refused anything to make DS sleep although he was taking up to 4 hrs to get to sleep and having nightmares kept waking up and was only getting 4 hrs a night AND was havingconstant meltdowns ect at school (cos they were not handling him properly) hes ASD and she wouldnt give me anything for that at all either bloody docs wtf how stupid are they and here they are giving you meds you DONT want or need