I am an adult with HFA and a mother of HFA... I am highly skilled yet I can tell you it is just the same hell all the way. DLA and CA gave some dignity, to keep the head above the crap.
We need to campaign for dignity for disabled people. I want my DC to work and to have fulfilling lives. But aint going to happen untill there will be a policy for employing ASD people. Inclusion and support in work.
The government say they want to reform DLA to focus on what disabled people can do, but actually they are doing the opposite. They are redefining disability as those who can't do much really. To more functioning of us who want and can work they are actually denying any support. So we are left alone with our children to descend in poverty and face the fact that we are not equal and everything we aspire for is inaccessible.
The right reform should give more support to more functional people so they can indeed stay independent and invest in their skills, support their disabled children. Otherwise what can we do? Hand DC out to SS?
We are just 1% of population, who will listen to us?