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Here are some suggested organisations that offer expert advice on special needs.

|Got statement but now what????

3 replies

hmmmm1 · 16/02/2011 13:07

Hi,
We have an 8 yr old son who has some asp characteristics along with severe anxiety. Brief history he managed until yr 2 and the week my husband and i separated he could not cope (not unexpected). School were horrible - 'we don't have problem children here' followed by middle class smirking. BST came in eventually after much battling and he settled back down until one final outburst 5 months after settling down and school tried to permenantly exclude him. Forced into managed move at start of yr 3 - lasted til lunchtime on first day and head said special needs go for a statement. We did, the proposed one arrived last week. My son has been tutored and at part time BST out reach centre - not really suitable but all they had. So now we have a statement and no school. We are being pushed by BST and council towards special but that means 25 miles each way in a taxi for boy who doesn't like strangers. CAHMS and Ed Pysch say mainstream with support (statement allows 20hrs per week) but when i phone and say he has a statement which indicates behaviour problems I can hear them running for the hills. Medication keeps being mentioned. My brain is baffled. Any ideas or even glimmers of hope about what to do or which way to turn. My boy was always going to asp as my brother is but his anxiety relates directly to appalling treatment at previous school.

OP posts:
IndigoBell · 16/02/2011 13:37

You have to choose the school you like the best. The school can't refuse your school just because he has a statement (normally).

So go visit them all, and decide which one you want, and then send him there.

His statement is for ASD and Anxiety, not for behaviour problems.....

Yes, the HT might not be too welcoming on the phone. But go there and sniff them out in more detail. They might be great once he's there. I know this sounds weird, but that's my experience. My new HT didn't want us and did her best to put us off - but once DS and DD started she has been absolutely brilliant....

Don't choose a school with hardly any SEN kids. Choose one that has an avg number.

And choose one that is easy to get to.

A larger school will probably be able to cope better than a smaller school. For example they can put him in a diff class from someone who he doesn't get on with.......

bochead · 16/02/2011 13:41

Look at private provision, locally does his statement specifically state he needs specialist provision? Would he be better boarding.

Would a mainstream school take him on a flexi-schooling basis (he does just mornings) if you take responsibility for his education the rest of the time?

There are some primary private school sdotted around with tiny class sizes. Also what about mainstream with units attached.

I'm in a very similar position, my son's first school were terrible and the long term effects due to the anxiety he developed there stayed with him. He's just been kicked out of his second. No issues at home though I'm a lone parent,, (as in me one from day one) which is held against me at every available opportunity ; )

I've only just found out about this organisation BIBIC, but have heard amazing things about the therapies they offer. I'm hoping they can help me address his anxiety before his next school start, as all this change isn't good for him. I'm trying to get somethng organised myself and not asking anyone's permission to do so. If BIBIC isn't suitable I'll keep looking for some private therapy.

He won't be starting a 3rd primary until I am sure they can meet his needs this time, and noone is going to push me to do otherwise as he's not strong enough to withstand another failure. Academically he is mainstream level in terms of what he should be achieving. The new school has to meet academic and social needs, something that can get overlooked.

Do you want your child to have access to afterschool clubs etc, (these were a godsend for my son socially as an activity he loved science gave him the courage to start to make friends with others at the club. Will he be able to access these if the new school is so far away, and are you able to prove that it will be of above average benefit for him to do so in the long term?

The LEA are offering us a home tutor, which I know won't be full time school hours so I'm gonna get in touch with education otherwise and look for home ed groups for some social interaction & enrichment. I'm also going to enroll my lad in swimming lessons to give him a bit of social interaction. I'm quite content to let it drag on for up to a year so my son has time to get over the emotional upset he's just had rather than have him rushed into a placement that causes more long term damage. The financial implications of this are scaring me silly, but my local jc lone parent advisor is already on the case to help me get through this.

It's a hard balance, but does the school they are offering stay in line with the right NC levels your son needs? If he's bright and the school miles away doesn't that's your very strong argument for refusal, as it won't be "suitable to his needs".

Also if you organise some private treatment (NHS is too slow!) it'll show mainstream schools you as a parent are really serious about addressing your kid's issues. Can his Dad help pay? If he's willing to take some ownership of the upset caused by your split it will help, especially if you can get him to attend school meetings with you.

bochead · 16/02/2011 13:51

Forgot to say - the fact my son has taken part in standard "extra curricular activities" like his swimming lessons, a summer playscheme etc means that I have proof he can survive in a "normal" social setting if it is supportive.

It has made a difference to attitudes towards my son from LEA officers etc. If he can do "mainstream" leisure activities he can do "mainstream" educational activities with the right support I think they think. Kinda like "he's special" but not that "special".

A club or sport or group activity (so not 1:1 music lessons etc rain man is not the impression you want to give!) will help his self-esteem & confidence if his biggest problem is anxiety and offer mainstram schools a bit of reassurance perhaps. Just an idea.

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