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SN children

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Original poster

Have been given ASD dx today

17 replies

sumum · 14/02/2011 11:37

I am a bit in shock as at our brief comm pead app this morning she gave ds a dx of ASD alongside his ADHD.

Everyone including us think he has ASD and I was wanting the dx, but I still feel shocked.

We were only in there 20mins. Has taken 3 years to get to this point so it shouldn't be a shock. I feel a bit numb.

OP posts:

pagwatch · 14/02/2011 11:40

I think the diagnosis is always a shock, no matter how much you are expecting it.

It will take a while. But it is better to know, isn't it.

redismyfavourite · 14/02/2011 11:44

I agree, the dx is always a shock.

we were in the system for nearly 2 years before getting a dx.

I still cried after the appt. Partly relief that one part of the process was over, i think.

It takes time to sink in. But it is definitely better to know.

moid · 14/02/2011 11:58

Me too, community paedectrician just confirmed that she thinks DS1 (9) has ASD (mild). Mixture of relief and guilt.

How old is your DS?

Tiggles · 14/02/2011 12:00

I had been expecting DSs dx - the clinician knew I was expecting it, yet when she said the words out loud I still couldn't really take it in and missed the whole next set of things she said to me . Big un-MN hugs.

Spinkle · 14/02/2011 12:01

Be kind to yourselves and take time to think about it all.

You are bound to be sad.

I can't say the sadness ever really goes, you just get better at dealing with it.

Spinkle · 14/02/2011 12:02

Stick around here - loads of fabulous advice and experience

Original poster

sumum · 14/02/2011 12:12

thanks everyone. My ds is 7 and as I said it is not unexpected.

My dh had the day off to come with us and after we left I had to check with him that she really had said it.

We are going out for lunch together now, will probably sit in silence just looking at each other. (we will have to pretend we are so loved up on valentines day that we can't speak!!!)

OP posts:

lisad123isasnuttyasaboxoffrogs · 14/02/2011 12:18

take time and have wine with lunch. It takes a few weeks to sink in, even if you are already sure before dx

Spinkle · 14/02/2011 12:19

Have a lovely lunch.

You might be expecting the dx but it's still a kick in the guts.

coff33pot · 14/02/2011 12:34

Have a great lunch and a nice glass of wine. :)

I think you know that your child needs help and you know you got to find out. But actually being TOLD is a whole different kettle of fish.

Enjoy your meal and enjoy your son and look at the dx as an opening of doors that can only be beneficial :)

moosemama · 14/02/2011 14:21

Sumum, your reaction was the same as mine. I fought for it, wanted it, knew it was coming, but it still felt like I'd just been punched in the stomach when they actually said the words.

We went out to lunch afterwards as well and sat there without knowing what to say. I had a little sob, but I wasn't sure exactly why I was crying. - relief or sadness or maybe a bit of both?

I was up and down for a couple of weeks, but then regained my composure and got back into the fray.

Give yourself some time to ajust and accept and as coff33 said, try to see the dx as another tool in your toolbox for getting your ds the support he needs. He's still your lovely boy, nothing will ever change that.

cwtch4967 · 14/02/2011 14:22

I took DS 3 1/2 for a routine appointment with the comm paed this morning. DS has GDD and we are expecting a dx of ASD when he has his ADOS in April. I was caught a bit off guard by a casual comment made by the pead when she said that we all know the diagnosis and the ADOS is just to confirm. It's the first time she really acknowledged his ADS and it shocked me even though I know it is true..........up until now I feel as though I have been the only one seeing it and hearing it from someone else seems to make it more real.
Big hugs xx

EllenJane1 · 14/02/2011 14:48

Sorry, off thread, but what does ADOS stand for?

Original poster

sumum · 14/02/2011 15:10

Had a lovely lunch and have done nothing in the house. I am feeling a little less wobbly now. I have been on the phone telling people too.

Just off to school now so putting a smile on my face.

Thanks for all the support.

ADOS is a diagnostic tool, we haven't had that though.

OP posts:

amberlight · 14/02/2011 15:37

Glad you've had a good lunch. Remember there's mums like me who are on the autism spectrum on here too - we can be handy to communicate with, as we can help give a lot of tips and tricks for getting round situations...

bettyboop63 · 14/02/2011 15:44

i felt exactly the same sad/ relief and shock but i already knew the paed had told me but still had to have all the tests b4 "official" so why were we surprised i dont know but i was glad in a way too to know now the work of actually really helping him could start because b4 they were not doing much at all and had no support what so ever

StarlightMcKenzie · 14/02/2011 20:27

This reply has been deleted

Message withdrawn

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