anyone heard of Johansen Ias therapy and or camilla Leslie?

[dispondantandthensome]

www.camilla-leslie.com/index.html

None of the 'research' cited stands up tp scrutiny. It would be lovely to thin kthat listening to nice sounds for 10 minutes a day miraculously resolved such issues, wouldn't it?

it would lol

she does other things wonder if worth taking ds for the auditory processing side of things rather than that partic therapy

depserate really to help ds

that face was not directed at you by the way moondog

Auditory Integration Training does work, and would be a very good place to start if you can afford it, and get to it.

There a number of these programs around all based on the original work of Tomatis a French researcher.
The Listening Program is another.

What you have to realise is that any program has been developed and tested, and helps a specific group who have a specific type of problems and who are able to use the type of remediation being offered. Most of these programs can only offer a basic level of help, and none of them are cures.

Just because a program has provide some levle of help for one child it does not follow that it will help another child with similar problems.

There are two parts to thewse types of issues. The nature of the deficit or deficits, and the ability to develop alternative cognitive skills to work around these deficits or disorders. So all of our sons have APD, they all have different degrees or severity of APD,and they all have different compensatory skills and abilities.
The son least affected by APD is the least able to develop coping strategies and as a result appears to be the worst affect. But on a BAD day his brother can be really worse. Me I am supposed to be almost a worst case scenario with regard to those who APD, but I also have the natural coping strategies for my disability I am a Visual-Spatial learner (i think in pictures)
But again on a bad day when my coping strategies desert me things can go really wrong.

indigobell

we live miles away in another country sop no joy there but thanks :( looks good

FAO DOLFROG - There a number of these programs around all based on the original work of Tomatis a French researcher.
The Listening Program is another. THANKS I WILL LOOK THIS ALL UP I HAVENT A CLUE SO THIS WILL BE INTERESTING, THUS FAR ITS ONLY AUTISM OR APSERGERS THAT HAS BEEN BANDED ABOUT FOR DS WHICH I HAVE NOT FELT WAS RIGHT....SENSORRY PROCESSING DIFFICULTIES SIT WITH ME WAY BETTER.....

What you have to realise is that any program has been developed and tested, and helps a specific group who have a specific type of problems and who are able to use the type of remediation being offered. Most of these programs can only offer a basic level of help, and none of them are cures. GOOD POINT....

Just because a program has provide some levle of help for one child it does not follow that it will help another child with similar problems. ALSO GOOD POINT.....

There are two parts to thewse types of issues. The nature of the deficit or deficits, and the ability to develop alternative cognitive skills to work around these deficits or disorders. So all of our sons have APD, they all have different degrees or severity of APD,and they all have different compensatory skills and abilities.
The son least affected by APD is the least able to develop coping strategies and as a result appears to be the worst affect. OH I SEE! But on a BAD day his brother can be really worse OH OK THATS NOT GOOD :(. Me I am supposed to be almost a worst case scenario with regard to those who APD, but I also have the natural coping strategies for my disability I am a Visual-Spatial learner (i think in pictures)
But again on a bad day when my coping strategies desert me things can go really wrong. I ALSO THINK I AM PARTLY A SUFFERER OF THIS AND HAVE PASSED IT ON TO MY DS

HOW DID YOU KNOW YOU HAD IT?

is ASD the same as sensory processing disorder? as my son has issues with all his senses infact his hearing of information and taking it in is one of his better (tho not good) ones.

I get soooooooooooooo confused!!!

Some countries diagnose SPD separately and some don't. As far as I can tell almost all people with ASD will also have SPD.

SPD is not a usual dx in the UK.

Dolfrog is not right about AIT.

AIT starts by taking an audiogram of your child, then they customise the program based on that audiogram. Therefore AIT does work for all people that it's done on. I.E. if AIT is not suitable for your child then the initial audiogram will show this, and the therapy will not be recommended.

As far as I know none of the other listening therapies start with an audiogram of the child - therefore they are not customised for your child and don't work as well.

AIT is based on the research of Berard

I don't know what country you live in, but it really is worth trying to find out if you do have a local(ish) provider.

Evidence base for AIT very poor/non existent Indigo Bell.
No research taken seriously unless published in a peer reviewed journal.
Putting a lot of facts and figures to advertise your product on your own website is not research.

I am learning lots

Moondog - I am only saying it works because of the stunning results it has had for my son. There is no way his audiogram could have gone from a jagged mountain range to an almost flat line by coincidence.

DD starts this therapy on Fri. Her audiogram has also started off like a mountain range.

Studies are very hard to do (you have to find thousands of people who have the initial problem, and you have to convince them to partake in a study, where they may or may not be part of the placebo group) and studies are very expensive to do.

Who's going to fund the study? Certainly not the NHS. The last thing they want is for this to be proved an effective treatment - then they would have to offer it.

No one stands to make enough money out of AIT to fund the kind of study that would convince you. But not having that kind of study done on it does not mean it doesn't work - it only means the study is too expensive and hard to do.

My DSs hearing was dramatically improved, which helped his whole life. I can post back after DD has finished to say if her hearing was also improved. That won't be enough evidence for you Moondog, but for others it is very interesting statistics.

Although it appears the Sound Learning Centre is recognised by the NHS:

Can I get funding for the programme from the NHS?
We have a National non-NHS (Provider) Organisation Code and General Practitioners have the facility to pay for our services via their fund holding Primary Care group. This is more likely to happen in practices which are more knowledgeable about the services we offer. However, the severe budget restraints within the NHS often make it difficult to obtain approval.

Here's one study that shows it works:

foa.sagepub.com/content/14/2/73.abstract

There are loads more studies, but you have to pay to read them. But there certainly does seem to be some evidence that it works.

But I assume if the NHS is prepared to fund it, there must be some compelling evidence somewhere....

More research showing AIT is effective:

[[http://www.aithelps.com/efficacy-AIT.pdf The Efficacy of Auditory Integration
Training]]

The present review covers 28 reports on AIT. Twenty-three reports concluded that AIT
benefits various population subgroups, three studies claim to show no benefit (or no
benefit over that seen in a control group), and two studies reported rather ambiguous or
contradictory results. Considering the great difficulties in both providing a credible
placebo treatment and assessing improvement in the subject populations, these results are
quite encouraging. The balance of the evidence clearly favors AIT as a useful
intervention, especially in autism.

Studies don't have to cost thousands Indigo. What I am involved in costs peanuts and a lot of hard work and talented students.

If there is a lot of money to d oresearch, then that raises serious questions of impartiality so generally better if un or under funded.

There are some good links there-things worth reading which is gratifying to know. It is important to approach most things with the opinion that if it sounds too good to be trues, it probably is.

I've seen many desperate people ripped off and exploited when at their most vulnerable-searchnig for help for their children.

I guess Moondog, I personally don't know anyone who has been ripped off and exploited (besides by bleeding dyslexia tutors) - but almost all of the people I know in real life are too scared to try therapies like I have been getting great results from - because they are so nervous about being ripped off.

And to me that's a real shame.

I would far rather spend money on a treatment that may or may not work - then sit round saying there is nothing more I can do for my children.

But in actual fact all of the therapies I have tried with DS for ASD have helped. It's DDs bloody dyslexia I haven't yet found anything that helped..... But I will. I will solve her problems.

Indigo
AIT has been in and out of favour with the USA American Speech Language hearing Association ASHA as to its affectiveness. At one point it was banned from use.
Rosalie Seymour (Ireland) works from the AIT Institute And yes I forgot it was Barard and not Alfred Tomatis.
But the main pint is that there is not cure of any of these issues, and we the UK Medical Research Council, USA ASHA and others are still trying to develop the technology to understand the real cause of these problems. And so none of these programs can claim to really fully understand how they work. Although like most other teaching processes world wide much is recommended on "What Works" The problems is none of these programs work for all and they can not say why.
And more important of all they do not know when these programs area actually causing harm.

It is all still very hit an miss as to if the program will provide any help for any child.
The biggest problem the lack of program specifications say link the pharmacutical industry which has to state how each drug can affect any user, the positives side effects,and possible harm. The programs which are sold or marketed without pointing out the possible limitations of what is on offer, and that a program might be trying to provide conflicting coping strategies to those already developed by a child or adult who has these problems.

Anadin works for headaches but not everyone can use it, and it also may depend on the cause of the headache

There was one program which in the 1990s was marketed as the cure for APD in the USA. It was and still is very expensive. There is no cure for APD. The program can provide great benefit for those who are able to benefit from it, but it can be very costly waste of money for those who gain no benefit what so ever, which can happen.
So the claims of "cure" and "rip off" abound the whole remedial program industry needs some sort of regulation to prevent this sort of miss information.

Unfortunately like the tabacco industry companies are very good at providing so called research evidence that their products work, mainly be not including the data of the less positive results, one way or another. This tactic is used by many education program providers as well, by not including those who do not complete a course, and not explaining why they were not able to complete a course. So the program can have 100% success with those who complete the course, but may be only an average of 60% of those who actually started the course.

dispondantandthensome
I only discovered my own APD as a result of trying to get help for my children, which is how many of the 500+ members of the OldAPD forum found out as well.

I was self diagnosed for about 3 years and then when the Medical Research Council first officially recognised APD 2003 / 2004, it was suggested that the then chairman of APDUK should have a clinical diagnosis of APD rather than be self diagnosed. At that time the only APD clinic was based at Sheffield University as part of an NHS funded research program.

Indigo

before you notice my typing error in the sentence in my post above.
the original
But the main pint is that there is not cure of any of these issues, and we the UK Medical Research Council, USA ASHA and others are still trying to develop the technology to understand the real cause of these problems.
The typing error
we the UK Medical Research Council
should read
The UK Medical Research Council

I am not any way part of the Medical Research Council, although I have had regular contact with their Institute of Hearing Research for some years when representing APDUK.