Tell me how YOU cope?

[TheLadyEvenstar]

Because I am not doing so well.
Now we have a definate DX for ds1 I am questioning...

did i do the right thing
could i have prevented the aspergers
was it something i did during pregnancy
how do i retrain myself to deal with situations
how do i teach ds2 that it is wrong to copy ds1

How do/did you cope with these things?

Its not a problem I was feeling very low the other night - very down hearted.

But I bounced back Guess we have no choice do we?

I sometimes hit rock bottom in terms of not having a clue how to deal with my son's educational issues. However, I went to hell and back during my pregnancy to the point where my lovely health visitor was shocked when I didn't get pnd. I'm not suprised that DS has issues as a result of my pregancy if I'm honest.

However I firmly believe that every child is a gift from God. I love him more than I could ever have imagined loving another human being and my biggest concern is always that I am failing him. He is my world, he knows I love him, he knows I try and do my best for him, (even when my best means punishing him, setting boundaries etc)and he is the reason I keep going even on days when it seems like the world is stacked against us. I wouldn't change him for all the tea in China, because then he wouldn't be the child I love so much if that makes sense.

It took me a long time to come to terms with the fact that I couldn't fix my DS - he'd had speech therapy and occupational therapy, but it never ever clicked with me that they were linked and part of something more 'serious'

When he was first referred to be assessed for autism, I didn't think he had it - till I researched...

One of the first things I did was arrive at a friends house with a load of internet print-outs about Asperger's in floods of tears tears saying, no-one ever said that he couldn't be fixed, I thought he would be fine

he was 7 then, he'll be 15 in May - I do wish life was easier for him, I wish he could play sports and read his own writing, I wish school was easier for him because while he loves learning it is at the same time a horrendous endurance test for him, I wish that other teenagers could appreciate his good qualities (and there are many)

but I don't see him as broken and he is in many ways wonderful - I wouldn't change him either

I've actually had the...if someone found a cure tomorrow conversation with a friend who has a daughter with Asperger's as well, we both agreed that we'd do it because it would make life easier for our children - but that we'd be sad about losing the child we had, selfish gits that we are, lol

Ten Things Every Child with Autism Wishes You Knew might help you.....

Ordered :o Thanks for that

I think thats part of it tbh, I feel so alone. I have been reading these boards for a while now and posted a few times. So I know I am not alone yet over the weekend I felt so alone it was mad.

The worst thing is my sister won't accept it, she won't believe there is anything wrong - my mum and I have our beliefs as to why she won't but thats another story.

My mum, who I thought would be doubtful simply said "I knew that, and if it had been a known thing when my dad was a child he would have been diagnosed with it", that was her own dad she was talking about not mine btw.

I will order a couple of books and take the time to read them. Can anyone recommend a good book for DS1 he is an excellent reader.