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OMG we may have got our OT to change their mind about SIT

10 replies

loueytb3 · 09/02/2011 16:05

Long battle re statement. No dispute about the fact that DS1 needs sensory integration therapy. However, NHS OT offered 4 sessions which we've already had and that was put into draft statement.

I pointed out that the statement didn't include any provision for OT since we had already had it and we had been told that we wouldn't get anymore. In addition, we had a strong report from our private OT who said he needed weekly SIT.

It went to panel who said they wanted more information from the NHS OT about how much therapy they feel he needs. I assumed that we wouldn't get much more from them but I've just spoken to the SEN team and apparently they just received a letter from them and agree he would benefit from weekly SIT and have offered it to us for 6 months!!!!

I am gobsmacked. It has to go back to panel next week but surely they can't turn down a request which has been agreed by both the NHS and private OTs?

Just shows what can happen if you kick up a fuss....

Still waiting to hear the outcome of my complaint about speech therapy.

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IndigoBell · 09/02/2011 16:46

Bloody hell! Well done.

I'm green with envy.

bettyboop63 · 09/02/2011 16:52

wow just shows how if you complain in the right way you can (dont always, but always worth a go) get what you want and your DC needs well done hope it helps 6 months is brill

loueytb3 · 09/02/2011 17:22

indigo I'm wondering if word of my complaint to the SALT team has reached the OT team, given that they are in the same place...

betty I didn't actually complain to the OT, more set out reasons why DS1 needed it and that he needed it more often than the NHS were providing. I have to say that a lot of credit has to go to my private OT as they have written a fab report and follow up letter which I think has probably really helped.

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bettyboop63 · 09/02/2011 18:02

well it certainly looks like it worked ive found so far only when ive made a fuss but with "proof" IYSWIM that they've actually sat up and taken notice ive been lucky with a wonderful PP advisor whos been their at every step with me (I hear they are not all as good)I couldnt fault mine, she pep talks before we go in is always calm and takes notes and had gone far beyond the call of duty i just dont know what i'd have done without her shes so dedicated , its a mine field out there isnt it

MarioandLuigi · 09/02/2011 19:57

Well done :)

Eveiebaby · 09/02/2011 20:09

I am very pleased for you and your DS1 - well done for challenging the professionals Wink

loueytb3 · 16/02/2011 16:10

Just spoken to SEN and the panel has agreed and its going in the statement! Looks as though we will be able to get the private OT to provide it (although I will have to take him there) but instead of paying £63 a session, it will be free Smile.

Not such good news on speech therapy, will start a new thread about that when I've calmed down. You win some, you lose some....

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IndigoBell · 16/02/2011 17:56

Yes - but you just won a lot!

63 * 26 = £1638!!!!!!!!!!!!!!!

Eveiebaby · 16/02/2011 23:53

Smile Smile

loueytb3 · 17/02/2011 11:03

indigo you are quite right, looks like a good win when you put it like that Grin

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