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SN children

Here are some suggested organisations that offer expert advice on special needs.

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Original poster

Ha Haaaaaaaaaa!

17 replies

Mists · 07/02/2011 14:59

The Paed who refused to support our application for DLA mobility / Blue Badge was blocked into the car-park my DH earlier.

At that appointment she cited the fact that her NT son needed to use a stroller when they were were on holiday and walking around a lot. He was seven.

DH was dropping our son off at the clinic where the special playgroup for disabled children is also run. She told him to move his car.

He replied that he could have parked in the disabled space opposite but that because she had not supported us that she would just have to wait.

He also said that our son is unable to walk for more than a few metres but since she compared him to a seven year old getting tired would she like to try to walk DS from the car park across the way? I would have loved to see that if it hadn't have meant certain death for DS. And for the Paed shortly afterwards by my hand.

She stormed off back into the building

OP posts:

Spinkle · 07/02/2011 15:15

Hehehehehehehe!

Revenge is sweet. Thought a blue badge and DLA would be even nicer

intothewest · 07/02/2011 15:42

could you get a second opinion ?

brandy77 · 07/02/2011 16:03

lol, good on your husband, hilarious!!!

shaz298 · 07/02/2011 16:10

Actually I might be inclined to make another appointment and ask her to reconsider!! x

loulou77 · 07/02/2011 16:12

well done your DH!

Ben10isthespawnofthedevil · 07/02/2011 16:45

hahaha

Al1son · 07/02/2011 17:15

Good for your DH!!!!

I can't believe she lets her NT 7 year old go in a stroller and thinks it's normal!

SparkleRainbow · 07/02/2011 17:18

hahaha, I wish I could repeat this cos I think my Paed Rheum has done exactly the same!!!!!

Just going to have to read him the riot act instead, does your dh have any pointers!

signandsmile · 07/02/2011 18:59

does feel as tho she got her just deserts!

chickchickchicken · 08/02/2011 00:48

i didnt think you needed paed's support to get a blue badge?

Original poster

Mists · 08/02/2011 00:58

Sorry I wasn't clear. Desperately tired earlier.

Where we live you can have a Blue Badge if you receive DLA for mobility. The Paed told us that she could not support our claim because most young children, even her NT seven year old, can be transported perfectly well in a pushchair.

Fine if they are happy to go in one I suppose but I usually end up carrying DS for journeys from the car to the door of a place because he is incapable of walking out of doors. Sometimes just in a safe manner but usually completely. And he is only ever going to get bigger and heavier.

I'm not the only person who has had problems with this Paed btw, she is notoriously barking. Just so you know I'm not simply being mean!

OP posts:

Al1son · 08/02/2011 09:09

Mists you are perfectly justified in your anger. If she was right DLA would not be available for children under 7. She's making a judgement she's not entitled to make.

intothewest · 08/02/2011 09:20

I don't think you are being mean,she sounds mad-
Can you get gp to sign the form ? or another paed..? I was serious about a second opinion-

and most 7 year olds do NOT (and WOULD NOT) go in a buggy (as I know from the 'looks' I get when I take ds out in his 'major')

Davros · 08/02/2011 09:25

That is the best thing I've heard all week. Can we give your DH a special MNSN award?
Even if a 7 year old could go in a stroller I don't know ANY who do, its hardly "normal".

Original poster

Mists · 08/02/2011 09:41

I am going to look into changing Paed. I am convinced DS qualifies under virtually unable to walk / severe mental impairment.

There's a bit about temporary paralysis in the criteria which she point blank said was wrong because it was only his mental state / autism and not physical.

DLA's own guidelines classify autism as an organic physical condition but she wasn't having any of it even though I brought them to show her.

And then she said that was only when autism was caused by something like Downs Syndrome. Eh? I've never heard of DS causing autism

The clinic car park is always crowded with no real spaces and cars pulling in and out / reversing all the time and isn't safe to wrestle DS with his phobias of vehicles into a pushchair. The disabled space is right next to the path as they usually are so a Blue Badge would make life so much easier wherever we go. We're okay for supermarkets as we can use the parent and young child spaces but he won't be three forever.

Everyone else involved with him have written supporting letters for our appeal but not her.

Still DH is now the hero of the clinic special pre-school, had to text them all when I heard

OP posts:

Davros · 08/02/2011 09:43

ASD does qualify for hr mobility under behavioural issues, I've posted the excerpt on MN before. Also look at NAS website for guidance. It would be great if you can get round her, she is an utter w**ker

Original poster

Mists · 08/02/2011 09:52

Thanks Davros. I did print out the NAS routes to qualifying to show her, its a great guide. But DLA are arguing that he is choosing not to walk ( ie can be motivated and cajoled like an NT child, he bloody can't be) and that his behaviour isn't extreme.

Examples of his extreme behaviour are littered all over the care part (he does get HRC)

This lady has only met him once as we were transferred to her after dx. I just thought a letter from a Paed would help carry more weight but she has her own ideas. Actually I wouldn't be surprised at all if she had written to them saying those things based on meeting DS for half an hour

OP posts:

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