Heart murmur

[lovemy2girls]

Hi wondering if anybody has any advice .
My dd1 was born with DS and has an atrial septal defect . There was no murmur as a baby but when she had her school paed review we were told 2/6 systolic murmur on the left sternal border . Her docs are terrible at explaining things and have never expained this .
Does anybody know if because there is a murmer now its something to worry about ?
Sorry for the questions she is due her cardiologist review in May and if the ASD is not closed she will need surgery maybe its because I'm a little anxious about this that I'm worrying

Thanks xx

My boy has a VSD and therefore a heart murmur, he was born with it, and actually so was I. As time went on, they decided it didn't need surgery as it got no bigger (while he did get bigger, if you see what I mean). But a pal's baby born with an ASD did need surgery - she had it, and is now running around fine. The surgery was traumatic for the parents but she didn't really know anything about it, they are very good.I still have my VSD but have never suffered any consequences, plus my boy is the most active child in his school! I hope it turns out well for your little one! x

Hi, my son was also born with DS. He also has a heart condition, tetraology of fallot part repaired. I'm sure his murmor is 2/6 or 3/6 at the minute, though his tends to fluctuate up and down the scale.
The numbers just give an indication as to how the murmor can be heard. Even if the ASD hasn't closed you may still not need surgery, depending on how pink the skin is and how breathless the child is.
My son was verging on black, he was that blue in his skin, lips, extremities, though still didn't get his surgery until 18 months even though he was supposed to get this at birth.
Busy getting kids sorted for school at the mo, however anything else just ask.

Hi - my dd has DS and has VSD & ASD. She's monitored every 6 months by the cardiologist, but as she is showing no signs of cardiac failure they are just doing a watching brief, it is hoped that the holes will heal eventually, but when I asked for rough timescales they couldn't say (they put a range of 6 months - over 40 years). We're lucky that we have great doctors, it seems that their view is that as long as dd is not showing any outward sign of distress then it is nothing to worry about.

When dd was first diagnosed her neo-natal nurses gave us this great book on heart conditions from heartline, if you haven't already been in touch with them it might be worth doing so as they may be able to explain things more clearly than your doctors are doing.

HTH

Thanks for all the replies I feel a little more at ease now .
When she goes back this year this is her 2 year check up . He did tell us last time that although the problem wasn't any worse he was hoping it would have closed and indicated to us that this time it may mean surgery . Although not a definate this is a little worrying for us I'm just glad that there are other here who understand as none of my friends with kids do .

I don't know the technical term that you were given but I do know that the murmers aren't always heard. My DD also had an ASD which wasn't diagnosed until 18mths even though she had been listened to countless times by loads of professionals (she had other health probs). Of course it is worrying for you, but try and think of the positive that there is hope that it will close of its own accord - a lot of them do. My daughters was repaired because she wasn't gaining weight well and had pneumonia, but the procedure was key hole (catheter) and was really fine. She was absolutely fine the next day and is something that I rarely think of 1 year down the line. They can't repair them all key hole, and open heart surgery is not a nice thought, but the chances of this outcome are low. Heartline have a very good parents forum if you do want to discuss it with people who understand well.
Fingers crossed that her check-up goes well this year. x