dd has a learning delay?

[kate45]

Please can someone advise me? My dd was diagnosed with Agenesis Corpus Callosum by MRI before her birth, she has been asymptomatic as far as we could tell, no delays in any development etc. She started reception in Sept and we didnt tell the school about her diagnosis as she seemed unaffected, but now we are told she is only on level 3, children need to get to level 8 or 9 by the end of the year and they hope she can get to level 7.

I have two questions, firstly does anyone know about these levels and does her situation count as a learning delay?

Secondly, and related to the first, do we now tell the school about her diagnosis?

Please help, I really need some advice on this?

if you have a look here you can click on download and it will tell you what is expected for each level, I'm assuming they are referring to the early years foundation stage profile?

are the school concerned, are you concerned, is she a summer baby, have you had any follow up since the mri?

hi, yes it is the foundation stage profile, thanks for the link. School say they were initially concerned as she was at a very low level on starting, but went to a private day nursery while the others went to the school nursery and were taught reading while dd's nursery didn't do this.

She is one of the oldest in her class, which concerns me! School say she is making progress, so they aren't worried, but I had no idea till yesterday she was at all behind her peers, so we are concerned, yes. I just think maybe I need to tell the school as everything I read about acc mentions problems becoming more apparent with age, not that the condition is progressive but that the effects show at a later age.

Dd was followed up from birth by a paediatrician but discharged and we were told to expect no further problems, but all the literature on acc mentions stuff happening at school age so we are on our guard about dd, I suppose.

I really think we need to tell the school but I am reluctant to if how she is doing is still within the "normal" range. I just dont know what to think!

Is anyone able to help? Does anyone have a child of school age with this condition at all??

obviously it's up to you what you say to school but you really want to keep a close eye on how she is progressing and that may be easier if the school are aware that there is the possibility that she may experience difficulties. Making progress is of course great but you want the progress to be in line of how the other dcs are progressing and if it's not then you need to start doing something pretty quickly to give her the best chance, you don't really want to play the wait and see game.

go to see the senco and speak to him/her about what they will put in place to monitor her progress and what support they can offer. They may suggest school action and an iep.

a very useful read would be the SEN code of practice, it's sets out what you should expect of the school.

unfortunately this board doesn't get the most traffic, the sn children one does, start a thread there with acc in the title

thanks bigcar, will do! and thanks for your advice. I have made the appointment now, after thinking things over I came to the conclusion that for dds sake the school do need to know, and as the condition is so rare and so individualised, I am preparing myself to educate them!!

Hi kate45

I have an online collection research papers at PubMed regarding "Angenis of the Corpus Callosum" on my [[http://dolfrog.org/PM-Invisible-Disabilities.html PubMed online
Invisible Disabilities Research Paper Collections]] web page
i hope this helps with information about Angenis of the Corpus Callosum