think that dd has CP

[jenk1]

i have been thinking about questions and things that the peadiatricians were saying about dd during her stay in hospital this weekend.

They said she has a "problem" with her legs, that her legs are very weak and that she requires physiotherapy.

They asked me if she has ever choked on her food and i said no but i have since remembered that in the early months when she was excusively b/fed she would always choke when feeding,they were very interested when i told them that she wont lie on her front and that she screams if put on her front,they asked me if i had any ilnesses when pg and i did various colds,viruses and Bells Palsy- when i said that they said "AH".

They asked if she cried straightaway when she was born and if she had any breathing difficulties-which she did and she was in SCBU for the first day.

And finally they have told me that they will be requesting a Brain Scan and an MRI scan as well.

Oh and they are checking her blood for chromosomes,they wont tell me what they think but i remember reading on here a while ago about someones baby who had been diagnosed with CP, so i looked on the Scope website and all of dd,s conditions are listed there

She also suffers from really bad constipation and is at the moment back at the hospital with DH having an enema as she is in pain and straining-i dont know if i am being paranoid or what.

Sorry to offload-YET AGAIN

i'm sorry. CP did cross my mind when you m,entioned her problems the other day/week/ sparklymieows ds and dd have cp.

Don't apologise for offloading - you are having a really hard time at the moment.

I don't know much about CP so can't be any help but I am sorry you are having so much worry and stress. I wish the doctors would just be straight with you about what they are investigating, rather than leaving you guessing.

Yes she has the signs that CP had happened, but don't panic till they say 'ya or na'
DS also had blood tests as many conditions have the same sign as CP. He was tested for angelman symdrome. How old is she??

What a nightmare i have a dd with CP - but was lucky that they manged to diagonise her strgiht away - they never did any blood chromosomes at all.

spookly- she is almost 18months, i wish doctors would be straight with me but then i suppose they dont want to distress parents until they are sure.

She is having really bad constipation at the moment but she has a really healthy diet with plenty of dried fruit and fibre but on the scope website it says that one of the side effects of CP is constipation.

She has just started crawling in the last month, she sort of pulls herself with her arms and drags her legs behind her-she will stand up for a couple of seconds but with her legs bent and her right foot bent over, i think i know that the outcome is going to be-what a year-finding out that DS has Autism, i have Aspergers and now possibly that DD has CP.

Oh Jenk thats a hell of a lot to cope with.

When doctors are not straight with you, you can't help but search for answers yourself. Before my son was DX I couldn't stop and I got myself in a right state about all the things that could be wrong.

When is DD being seen next?

she is being seen on the 7th of nov, this morning in the hospital a student doctor came round and asked did we mind if he asked some questions about dd, we said no, he starts on about her development delay and then asks does she lose her balance and does she have any difficulty swallowing-i thought hang on even he knows whats wrong with dd but i just wanted to get out of the place so didnt press it any further.

DD diagnosed with CP at age 15 months but don't panic. CP comes in all different flavours! My paed said that they don't do a brain scan unless they're unsure of the diagnosis. DD has problems with swallowing, constipation and co-ordination and has made great progress since we plugged in to all the professional services. Good luck on the 7th.