anyone with a child with cp or physical disability...

[chatee]

anyone with a child with cp or physical disability want to kindly share any statement of special needs "useful phrases" please, ideally looking at ks2 or 3 but anyone with knowledge would be great

received statement today it's going to be used as toilet paper it's that bad

bunping for you ^^

What provision do you want;and what did you get offered ?- my ds is younger and we are trying to get statement updated

Really depends on what support is needed and in which area.
My son is 10 andytear 5 with full support and non contact time.
Ask away and i can try and help x

basically we have nothing describing her needs and then nothing specified or quantified at all

just the headings

gross motor
fine motor
greater independence as a learner
social interaction

and then the waffly words that don't actually state anything!

advice from majority of profesionals,parents and child ignored

brief desription:wears afo's can't walk without them,wheelchair at school for 'wobblier days',academic as peers although slow to read,listen and digest info, struggles to write-low self esteem

help needed if you would be so kind x

Ds is only 4 and has a Revised FInal Statement (!) written by our lawyer, but with a certain amount of legacy from the inital one. It is very thorough now!

Part 2 starts with an introduction to ds, then his approaches to learning, communication and interaction (i.e. primary barriers to learning stem from his diagnosis and have an adverse effect on ... then pads these areas out drumming home need for 1:1), behavioural, emotional and social needs (drumming home need for 1:1) , sensory and physical needs (drumming home need for 1:1) and a summary of his SEN.

Part 3 lists his objectives (related to previous summary of SEN) and then sets out the educational provision to meet his needs and objectives (giving type of education required - i.e. special school, need for wheelchair accessibility, need for 1:1 and class size, need for close liason/seamless approach, role of SALT and communication approach, SALT provision, role of OT and physio and approach to lifting and equipment, OT provision, PT provision, developing play skills, developing choice-making, developing attention span, developing relationships, access to in-house clinics and outreach work in school holidays, access to summer school and after school and then also monitoring (IEPs and reviews) of all this.

Part 4 is school (obviously!)

Hope that helps. Can give you more specifics if you need better idea.

Firstly though you need to ask what do you want for your dd? Could you start with Part 4 and work backwards to start with? I think the rule is whatever you want in Part 3 has to be based on something in Part 2.

FWIW our Final Statement was rubbish too (despite delaying it a month by trying to get them to heavily revise it)- though it did at least name the school we'd wanted (we were an absolute pain to deal with in the period between receiving the draft and getting the final). Have sorted it out now though and am sure you will too if you persevere. All comes down to money at the end of the day.

thanks,yomellamoHelly

we didn't have the knowledge of mn behind us when dd was first statemented and they are trying to give us another 'wooly one' for secondary and i am going to make sure that i do my best for dd as there really is no messing around with secondary education -
she has done really well at primary and from being a non walker at nursery, using a kaye walker in reception-year 4 and (really cos only the school is quite small)manages with just her afo's and i am so proud of her but i really need to get this right for her to have the best of[limited] opportunities.

We now know which school as it's named on the statement but without transport- which i am going to argue for as this school best suits her needs(and the la parent partnership agrees with this),there is 1.5 miles difference between this and'official' catchment secondary(which out of 15 last year only 2 went to but the la are happy to send everyone to the other school as it removes them of the responsibility of transport(rural area), so if anyone can point me to any case laws or information that may help me please do

The LA has to respect your preference for the other school but you need to demonstrate why the closer school cannot meet her needs. Can you pay it a visit / talk to the staff etc then write a letter?

thanks yomellamoHelly

anyone else with any info? please

have a meeting tomorrow

anyone on sp...kxx i. uk site? have tried to register but waiting for confirmation know how long it takes?

(hoping there is more info over there too)

used to be but not now.....

go to the IPSEA website or SOS/SEN websites for info on transport - as long as you can prove the other school can't meet needs then you should get the transport.

You need to look at the reports that the LEA have done to support the statement - they will take what is written in these to make the statement - so if the physio says 1;1 once a week then that is how you get the input onto part 3 - which is the most important part. SOmetimes its worth getting outside reports done for OT, and SALT which mike specify more of the needs.

do not accept words like regular; access to or high adult input and these mean nothing leagally.

good luck

thanks,twlight

anyone else - could really do with some phrases from a well written statement for a child with physical disability

hoping(fingers crossed)

my dd has cp and but is only 4. Her statement is very well written and we have got everytthing she needs but I'm not sure how relevant it would be for your dd. I've jsut send dh upstairs to dig out a copy so I can have a look through it for you.

Hi, here aew a few examples:

" dd will need support throughout the school day. she will need sensitive support for personal care and to allow her to cope emotionally and socially so that she can thrive and fully access every part of school life. DD needs close supervision and support to ensure that she is safe and all of her physical needs are met so that she can concentrate on her school work."

"a fatigue management plan needs to be drwan up by the school staff as dd becomes fatigued and tired easily which results in further increase in her muscular tone and physical difficulties"

It is a detailed document, specifying in minutes when physio will be done etc as well. I'm happy to send you a copy of the whole thing if you pm me your address.

We have a rubbish statement too. But my rewritten version contains some of these suggestions.

"DD will be visited each half term by an OT and any recommendations will be carried out within 4 weeks of that visit"

"1/2 termly specialist literacy support from someone with specialist knowledge/experience of teaching children with CP to read and training for class teacher in this specialist area"

Don't forget if slow to write, she could be provided with a laptop and software - "DD will be assessed every 6 months by someone specialising in IT and SEN, any equipment recommended to enable her to access the curriculum will be provided"

"Copies of worksheet, ppts, etc used on interactive whiteboard will be provided for DD to access on her laptop" (Can make it easier to read and continue work at home)

"Half termly Multi displinary team meeting to co-ordinate everything and everyone working with DD including parents" - this is really important to make sure everyone is singing from the same sheet and that any problems get picked up as soon as possible

thanks for the info am just getting prepared for this afternoon and have added above suggestions to list for discussion

will pm you later hanging if that's ok?
ttfn

ok,am back from said review and now have two weeks in which to re-write parts 2 and 3 as we have a meeting with LA to negotiate statement.
h/t from primary was wonderful and(i was determind not too)made me cry a little and kind of put me off my stride
but LA rep eyes nearly popped out of said head when i stated my 8 pages of facts and inaccuracies and failure to meet SEN COP and intention to go to tribunal and then gave a official letter of complaint stating all of the above

still not a happy bunny but am now on a mission!

so if anyone would like to help me i would really appreciate any good phrases from well written statements for children with phsyical disabilities and concentration difficuties

thanks mn for all your help so far, if you can't help-do you know a friend that could?

Well done Chatee. (Have pmed you.)
Stick to your guns. Sure they make it as hard as possible in the hope you'll run out of steam and give up. Has happened to almost everyone I know who's got a statement for their dc.
In fact I wonder what the statement contains for the one child that hasn't had a fight. However the parents are very pleased to have got it so I've not commented. Dc's mum knows all the shenanigans we've had, weasily wording etc .... so ought to have picked some of it up.
Actually seems strange to think we're out the other side. Have learnt SO much.

thanks for the support, i really feel that i too have learnt (a harsh lesson)from naieve(sp?) parent to a pro active one and with all your help and support it will be right for dd and then hopefully i too will be able to share my knowledge with others in the same situation.
will check in box, thx

thanks for the support so far mn, anyone else ?

After speaking to you "in person" LOL and realising we were speaking to each other on here :) I think i now have the same job to do as you, we are still waiting to find out if DS's next review is his phase transfer (i have a feeling it will be).Have managed "to find" his statement and looked through it. Do you have anything about suitable transport for school trips in yours? Am not sure if you DD would need accessible transport or not? x

yes , was nice seeing you again and i am now sorted on the other site, thanks,
no, i don't have anything about suitable transport for school trips but do have an "action plan" from year 5 agreed with primary school about school trips(as accessible transport is required) which was there way of showing me how her needs would be met and by us parents agreeing and signing it as well as school, physio, ot and h+s person but hadn't even crossed my mind for secondary so thanks for the reminder!

That's the problem i have,the school that we have now do so much and are fantastic. How are we supposed to know/remember everything that should go into a statement.All the standard stuff is fairly easy (if you have a decent therapist report) but it's all the "other" bits like transport for school trips, which is different to transport to and from school!!

Is there anyone out there who's child uses a VOCCA? We are in the process of deciding which one is best for my son, so i need something in part 3 to do with funding one?!!