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DSM 5 for autism

44 replies

RGO · 28/01/2011 14:14

Hi
Just wondered if any of you lovely ladies have seen this...and if so what do you think???
leftbrainrightbrain.co.uk/2011/01/proposed-dsm5-autism-diagnostic-criteria-made-public/

Sorry if link doesn't work btw i am on iPhone!!

OP posts:
chocoholic · 28/01/2011 14:21

Is it very different to previously?
DS still ticks the boxes so still has ASD Sad

lisad123isasnuttyasaboxoffrogs · 28/01/2011 14:32

tbh, looks pretty much the same as previously, you always had to meet the 3 areas of impairment and most paeds wont give a dx unless its causing issues so dont really see much change.

bullet234 · 28/01/2011 14:36

The only real difference I can see is the inclusion of the sensory issues.

amberlight · 28/01/2011 14:40

I like the page on 'severity' www.dsm5.org/ProposedRevisions/Pages/proposedrevision.aspx?rid=94# that they have now included, and a lot of the wording that clarifies what to look for.

IndigoBell · 28/01/2011 15:08

Hmmm. I don't think DS does qualify anymore.

Yaaah?

Do I get booted off the SN board?

Thecarrotcake · 28/01/2011 15:26

Indigo you are never allowed to leave ( hotel California lol)

I quite like the new thing.. Loving that sensory stuff has been included! This would actually put ds at a level 2 ..
And he may actually be able to get help at school!
( sigh).

Phlebas · 28/01/2011 15:26

ds doesn't meet the criteria for B " Fixated interests and repetitive behaviors". The one sensory issue he may have had (apparent hyposensitivity to pain - I think it was more of a language issue) has resolved without us doing anything.

It describes ds even less well than the old triad of impairments did - he doesn't have/has never had ritualised/stereotyped behaviours & no sensory issues. Are they going to come up with a category for people with more social communication difficulties than SLI but not ASD? That's where ds is imo.

meh really.

Thecarrotcake · 28/01/2011 15:35

So will this mean with the sensory stuff included, that we can just have ..ASD level 'x' rather than.. ASD/AS + SID etc as I'd quite like to see the SID dropped as I'm am totally sure it's more linked to ASD than anything else for DS.
And the level bit I like .. How much easier would education/ DLA be when you already have a level of need discribed on paper.... Yes there will still be individual bits and levels in different areas.. But it give a better basic view..
I suppose we will wait and see

Peachy · 28/01/2011 15:54

It's exactly what I was told was likely to happen (know someone on NICE committee who knows people...)

mine still qualify then. Quelle surprise.

They ahd to battle o include sensory though so a big plus there- will help people to get OT etc.

Peachy · 28/01/2011 16:02

DS3 fits communication level 2-3, RBB level 3

DS1 fits level 1 but his needs cannot be based on that due to his aggression whcih usually directly stems from his lack of social understanding and empathy. More banging head against table for me then! (saying that it's well documented now and he has the school pale and everything else sorted)

Peachy · 28/01/2011 16:03

'How much easier would education/ DLA be when you already have a level of need discribed on paper....

Would it?

See, ds1 gets HRC becuase his lack of empathy means he requires 1-1

Yet he fits criteria for mildest level.

ATM we describe hhim as severe Asperger's- a phrase that was a real light bulb moment when I read it- but it could technically work against his getting help no?

Thecarrotcake · 28/01/2011 16:13

Peachy ... I hope not.. I was hoping that the level would give a starting point.. Where you'd then go through the care/ mobility aspects..and with the reports..Etc

Mind we are talking benefits and cut backs so you could sadly be right..

We are sort of opposite to your situation... So ds would get a label that should state how much support, plus it takes into account the sensory...

Do we know why they haven't clarified ToM issues as such?

Is this going to effect the ICD-10 ?...

Peachy · 28/01/2011 16:15

ICD-10 is compeltely different so no idea

ToM is a bit ocntroversial isn;t it? lots of input from the neurodiversity mvoement IIRC and they're ofetn not impressed with it.

Thecarrotcake · 28/01/2011 16:26

I know but it a lot of ToM that accounts for the social aspect ( including lack of empathy etc..)..

Unless your ds fits into a higher level because his ToM directly affects his social abilities... Even though he can be a charmer.

I don't know < brain explosion>

Peachy · 28/01/2011 19:21

I recently read some research that broke empathy in ASD down into CE (cognitive empathy) and EE (emotional empathy)

It suggested most ASD kids ahve a deficit of EE (or surplus if you read the whole intense world thing) or a deficit of CE- it's an imbalance.

DS1 would fit into the rarer group that has a surplus of ce and deficit of EE- the machiavellian presentation.

That, with some sensory stuff and a lack of ToM is what makes him, him (IMO)

cornsilk · 28/01/2011 19:22

when does this come into effect?

ouryve · 28/01/2011 20:05

So, sensory stuff is included and actual speech excluded (from the communication criteria) - makes sense if they're now including all ASDs under the same umbrella.

I like that exemplars are given of degrees of impairment. I know too many people who have struggled to get a diagnosis because the diagnosing professional interprets "impairment" to mean "absence"

And on the levels of severity, DS2 appears to be level 3 :( and DS1 level 2 on account of the tantrums triggered by his resistance to change. He's more borderline 1/2 on social interaction.

Agnesdipesto · 28/01/2011 20:39

crap we're still level 3 for everything

bullet234 · 28/01/2011 20:41

I would be 1, 2 on a bad day, Ds1 would be 2 and Ds2 would be 3.

ouryve · 28/01/2011 20:43

Those whose kids no longer seem to fit the ASD criteria, there's a new category of social communication disorder, which might be worth looking at - will be interesting to see how that is used and whether it picks up more kids who are currently being missed because they don't have the stereotyped behaviours or sensory difficulties.

Peachy · 29/01/2011 00:00

2012 for this IIRC

amberlight · 29/01/2011 07:59

Maybe 2013

signandsmile · 29/01/2011 08:15

Sorry, silly question, does this mean it comes in for new diagnoses, or that everyone gets re-evaluated? and if so by who?

amberlight · 29/01/2011 09:35

just new ones

Peachy · 29/01/2011 11:43

Yes, has to be new ones.

Am nbot sure about the levls being 1, 2 or 3- the more I look the more sure I have a 1.5 and a 2.5 PMSL