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Journey

8 replies

Pazzaz · 24/01/2011 20:49

Just sharing basically - my son is 17 and has fragile x syndrome and autism
love him to bits. There have been times where I've been very close to putting him into residential care, went through a horrendous time went he hit his teens
biting, pinching and banging on walls
s697.photobucket.com/albums/vv340/Pazzaz-/fragile%20x%20syndrome/

I am completely on my own with my son, no friends family etc. Did have lots of friends etc, but during the years who wants to come round when a child is being incredibly anxious and banging etc, on walls,
although he does have behavious he is alovely and loving young man and I am very proud of him.

He was attending a school for sld but basically was left on his own alot of the time and we was living in a terraced home - complaints from the neighbours and all good fun from the environmental services, because he was banging on walls, he enjoys the feeling - sensory issues,
so i decided to up and leave the property and school and move counties
come across a great school online, managed to get into a detached property with all hard walls, where i wasnt having to forever replaster the walls, smiles me - looked after him completely on my own for many months until the placement and funding was approved for the school.(and yes tiring and exhausting day in day out) But alls well that ends well- thank you for sharing my journey - its been a challenging one, where times i have felt at a total loss, and difficult to cope

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Pazzaz · 24/01/2011 20:54

s697.photobucket.com/albums/vv340/Pazzaz-/fragile%20x%20syndrome/

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Marne · 24/01/2011 21:08

Thank you for sharing, i have 2 dd's with ASD, my youngest loves to kick the wall when she's led in bed, luckily she's only 5 and our walls are thick (no complaints yet).I'm glad that all has worked out well for you and your son.

Pazzaz · 24/01/2011 22:18

my boy didnt start on hand banging on the walls until he was around 12 yrs of age

and thank you - very kind of you

take care and have funX

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Pazzaz · 24/01/2011 22:29

ahnd I do approach most things in a fun way
and being in a detached property does help and the walls are solid - no replastering of walls

who has to replaster?

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Pazzaz · 24/01/2011 22:59

and im such a idiot - but i am soooo proud of him, he is in a great school, Eagle house - norfolk

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Pazzaz · 24/01/2011 23:05

and thank you Marne, when I moved
and every tiny result I had, i would jump on adds tramoline and shout for joy

eventually well i had the letter, my son had a place at the independant school

well i had a trampoline moment and lots

of screams and shouts for joy

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Pazzaz · 24/01/2011 23:18

I just feel adam - better late than never

he attends Eagle House School
Norfolk

and my sons needs are being met

fun, laughter, communication, needs

and Adams needs are being met

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wendihouse22 · 25/01/2011 10:23

Pazzaz, you sound like a fantastic mum to this young man. Well done to you.

I'm reading up on schools for my son's secondary and know Eagle House to be excellent. You moved house/counties/school? ON YOUR OWN? I know how it feels when those friendships fall away. That's hard.

I'm happy to hear he's doing well. You should be proud of him and of yourself too. x

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