Friday Night SN thread-is it too early?

[DJAngel]

Hi all, hasn't this usually started by now? Have I missed it whilst searching for it?

Anyway hope it's ok to start by saying hello to all.. it's been a very strange week in the mnsn world. I hope everyone is ok, and I send my best to Riven and hope things have settled down today for you and yours.. Thinking of you.

Have been trawling lots of threads about cuts and planned protests on jan 24th.. I'm not sure whether will be able to in body but will be there in spirit.

Back closer to home.. still struggling with dd poorly and repeated pulling her NG tube out..ds off today too poorly but on the plus side a friend has cooked us a lasagne tonight and another friend dropped off a dozen chocolate muffins! Very chuffed with lovely friends at the moment.

I wish you all peaceful weekend.. x

hi dj, think a lot are on the welcome to the new members thread I'm not surprised you're chuffed with friends like that.

Oh - I was beginning to take it personally with no replies! :) Thanks for letting me know!

Hi DJ

Oh - I'm too late. Was just going to say hi and that I think someone said the welcome thread is the Friday night thread, iyswim.

How's dd getting on, any better? Did ds enjoy his party?

Assessments are over at uni, for now. So that makes me happy. I am exhausted but got to start work on the next 2 films for the 2nd semester on Monday, and I'm possibly meeting my collaborative project partner tomorrow so not really much of a break!

Still, hockey day on Sunday, my one day of relaxation a week!

My week has been pretty bad but knew it was going to be. However still managingvto smile because I know we got sensory grant stuff coming soon.

I have refused any further TAC and requested SALT specialist to talk to pead about preschool placement for dd2 given her own experience ofvthem this week.
Had Hanen lady vome and do filming and funny enough she is clinical lead for autism so she will be feeding back to pead too.

Dh has brought girls "hot Donalds for tea tonight which is what dd2 calls mcds!! We are having takeaway once his put them to bed, which is where I am now.

Just wish I could open wine but cant while on antibiotics :(

'have refused any further TAC '

Yes, you get to that point. I will never have one again either.

It was only my second one but wanted to know planned outcomes and there was nothing there apart from special school and ms school to visit each other and encourage more messy play! I questioned if it was worth the 8, yes I said 8!! Proffessionals time if these were the outcomes they were planing?? Lol

Just found out I'm in at 10am on Monday. So much for having a break between one semester's assessments and the start of the next!

Still, was able to enjoy a couple of drinks with mates on 2 occasions this week, which was nice.

how long was the meeting? An hour?

That is 8 hours of expertise that your child could have had in outcome-diven direct intervention ffs.

They would never provide that without a tribunal. And yet here they were happy to sit and drink tea for an hour and report it as intervention.

Did you actually say that Lisad?

Oh it gets worse! I've just seen our timetable for the semester. I could ACTUALLY cry!

I did I was very proud of myself. I also saidvthat I concerned that the mainstream preschool were unwilling to take on the advice of a specialist who clearly knew more about ASD than they did and asked them how many girls with ASD they had had in their setting previously!!
Yes we had; ms preschool leader and SENCO, sn preschool leader, salt, Pre school advisory teacher, sn lead for area, Snhv, outreach worker and me!
Oh her five hours 1-1 doesnt have be used just for her but issued for whole setting and includes time they need to attend meetings and do reports!
They also vouldnt name any friends she has but insisted she plays with other kids

Head also exploding with school hunt. Don't know which to choose at all, on the upside both I have seen so far are great.

Nursery Head has come with me to both and is right behind me, she is fantastic.

Also, SALT and support worker went into nursery for first time in 6 months and gave them a plan exactly the same as the one from a year ago. what great provision.

DD has also been sleeping appallingly and I am wrecked.

I am wrestling with-go to tribunal-or wait a few months-? I know the school I want,but don't think I'll get it;so is it best to wait to gather more evidence- ? It's so hard to PROVE a school is failing your dc(especially after reading your 6 page letter,they start to implement some of the things)

Aibu to be naffed off at dh?? I have been on bed with flu most of the week so he has decided to come to bed early too every night and so bugger all has been done and I now have huge pile of washing to deal with once I'm better!

Lisad, sounds like a nightmare. Wish I knew what to say to make it feel better, but know that realisticallythere's nothing that would - your frustration levels must be through the roof. If you can't have wine, I'm bloomin well sending you a ((very unmnetty hug)) instead.

Odd week here, ds got his diagnosis on Monday, I was put on betablockers and referred for both CBT and physiotherapy on Tuesday, dd started the local vipers nest play/toddler group on Wednesday (that was fun ) then we had a big meeting of all the professionals involved with ds1 (we had 9! ) at school on Thursday, which we were told was not a CAF or a TAC, just an informal meeting to plan the next term's support and a handover from the EP to the 1-1 inclusion lady.

Still the meeting itself went quite well - would be great if everything that was promised materialises, but ... well y'know.

It ended with me trying to be nice and thanking everyone for their support and his teacher leaning in and whispering "I wouldn't be too optimistic, you never know when 'these sorts' will decide to pull the plug" (meaning the SISS and EP team, who have so far not given us any reason to doubt them and in fact have gone above and beyond on many occasions).

Said teacher also spent the whole meeting telling everyone how hard it is for her having a child 'like ds1' in her class when she has "26 other children to deal with as well you know" and making reference to occasions when he's made her life difficult, most of which amounted to times she'd handled him badly. She even admitted that she's regularly sarcastic to him - but she thinks he's starting to get that now.

Flipping pills have wiped me out to the extent that I feel like I can barely move. I am beyond exhausted and just lifting my hand/arm feels like a major effort. Weird, because I had them years ago in an attempt to reduce my migraine attacks and they didn't affect me badly then - didn't stop the migraines either though come to think of it. Dh is away on business for most of next week, so I hope the side effects wear off soon or I'll just have to stop taking them.

Next week we also have my follow up at the GP and ds1's paed appointment to discuss his digestive problems and suspected absences.

Why do I feel like I'm trapped in a giant hamster wheel at the moment?

Oh Lisad, ya-most definitely not-bu. It must be a man thing, my dh is exactly the same.

When I was ill over Christmas he was convinced that all that needed doing was, changing dd's nappies, making porridge for breakfast, sandwiches for lunch, then something for evening meal and washing up. Honestly, you should have seen the state of the place after a week and we somehow managed to accumulate three bin bags of dirty washing on top of the full laundry bin, despite there being absolutely not washing on Christmas Eve and my living in pjs for a week.

Men!

lisa, yanbu, my dh would do the same sounds like a rough week.

intothewest, ime what you need is for the school to say they can't meet his needs. I got the head on side by seriously naffing her off

no chance,bigcar unfortunately-- that would solve the problem.

Hello all,

Not too bad this week. Medicinal wine for those having a tough week,...or for those who dont need an excuse.

DCs are tired/have colds/terrified of the wind...and DS is teething. So not much sleep in our house.

Waiting to see if we got DD in another school, so need another house and to start packing. Waiting to hear if DP got a new job.

Meet the Autism Team on Monday....she wrote DD a glowing report...Im not sure if she thinks school are doing a good job?

Sorry to hear about the tough week some of you have had. Lisa yanbu re your dh, my dh is the same.. When I was in hospital for 10 days over new year with dd dh as at home with ds. When I went home for an afternoon the house looked like it had been burgled. I was so angry. Hope your flu is passing quickly now and you'll be feeling better very soon.

Sorry to hear you've had a rough week as well Moosemama.. Nice to see you here.. Hope the effects of the drugs begin to settle especially if you're on your own quite a bit next week.. Take care of yourself.

Hope everyone gets some rest at the weekend..:)

Off to bed now..