I can't really post as I wish I could here, but something has happened in a professional context that has made me yet again realise the extent of corruption in The System and how it disadvantages children and young people with disabilities.
I am raising this with the very highest level of management and will see if I can take it further. I wanted to tell you this because sometimes there are voices in the system shouting out for your kids but they are not well received by those with more power. Sometimes people will appear to tow the party line while fighting the injustice where you cannot see. Unfortunately, it may not make a difference. Just wanted to say it, somehow.