David camreon needs to do more than sort one thing out

[SqueezyLouise]

I saw on the news today about resbite well I think there's alot more needed to be done , if I could of wished for a bomb to hit me or somin to take all the crap away I would of done along time ago , I ave 5 children I never had no issues before regarding my kids but havin a little girl 4 with spina bifida it's been a nitemare , she's amazing as a family we stick together but I'm sick of aving to fight for things and get nothing , arging that we want to be left alone , medical staff are a nightmare , council are to , we don't need a socail worker but without one we can't get free nappies for school grants to adaped house or anything , just because my little girl is disabled doesn't mean I should be treated like I do , I think we are all sick of it to be honest and I'm sick of writing letters to complain and getting no where

Hi,

Absolutely we all need to fight together. Could we then eventually make some difference.

I would also like to add my eldest son who is not disabled was forced to move out of the family home by the council few years ago. They demanded three quarters of the rent from him on the day he turned 18. He also had failed at school , mainly through stresses of living with an autistic brother and being bullied about it; made him socailly withdraw. At 18 he had no quaifications and was unemployed. He was a secondary carer to the family but the council tax people persecuted us and kept sending an inspector around who demanded money from him or threatened us with court action if he did not leave and we were served an eviction warning. This put the family in the situation of making my son leave home or us loosing the home we had fought so hard to get.My son left to go and lve with his Nan. I miss my eldest son terribly and want him home.He helps me and I can get a rest. He has been living with my mother some 80 miles away since he was 18 he is 24 now and still umemployed.Does anyone know if he came home if we would still loose our housing benifit again? He wants to go to college in the area we live in and stay here?

Hi every1, i jus joined, im a 23 year old single mum of 2 n a fultime care to my daughter, i have a son who is 3 years of age n in gd health n i have a 2 year old daughter who is serverly disabled she is blind, has cerebral palsy, she is quadralplegic, has epilepsy global development dilay, motor disorder, brain damage, n alot of other things wrong with her aswell. i jus watched the news n is really discusted with david cameron.xxxx

samwitch, the best thing I can suggest is phoning your local council and talking to someone there about it. In fact go to you local CA they will be able to tell you.

Registered yesterday on Mumsnet. Never knew this existed until yesterday. I am totally appalled at all the fights we as carers have to endure. There is not one positive story/post on which carers of disabled children get their entitlements or resource which should be readily available, WITHOUT all the struggles. My son unwell during the night, have contacted two local Hospitals for advise on his seizures/headaches early this morning, still no feedback. I have emailed Education and Medical professionals on Monday regarding matters. Local MSP involved, no constructive difinitive outcome. Still No FEEDBACK from anyone. Do these individuals in these high powered jobs actually care. What do they actually do? All about figures and statistics, how much savings can be made. They take from the public purse and as far as I am concerned line their own pockets.

I have a son with ADHD and learning difficulties I have been fighting for him since he was 2 he is now 11
I am now trying to get respite
and fighting to get his school to transport paid for by the education department
Who have refused to pay for a bus pass which would cost them £750 a year?
Because they are saying that it is parent?s choice to send him to this school
It is the nearest suitable school that could meat all his statement needs
The nearest catchments school repeatedly told us that they could not meat his statement requirements.
Georgina green education department at Suffolk county council has refused to talk about the transport and refused to go to mediation if it is to do about transport no one wants to discuss the transport problem
I asked the education sectary to intervene his office replied refusing to intervene
It is like banging your head against a wall
Carers save the government millions of pounds but if we dare to ask for help we are made to feel like beggars

Absolutely Tricia7212.

We have to keep on fighting and all fight together. All these posts are consistant with the fact that we parents/carers, are all fed up now with the battles we have to endure. To secure and get an acceptable QUALITY OF LIFE FOR OUR DC.

We should or ave we opened a page on facebook and get parents to take part

SqueezyLouise,

Opening a book on facebook would be a start, if not done already??