First ASD support meeting

[BagPuss71]

My DS is 6 and was diagnosed with 'mild' ASD last April.

Went to my first support meeting for parents of children with ASD last night. Found the whole experience very depressing and think I am still am having difficulty accepting all of it. Stupid thing is though is that he now has a statement (he's in mainstream school) and that last meeting I had with school was very positive, they could not praise him enough. So why do I stil feel so sad? Cross with myself for feeling like this - it could be so much worse!!!

When I got home I thought for a splilt second 'I must call my mum' for abit of TLC and then remembered that I couldn't as she died five years ago - oh what I'd give for just a few minutes with her now!!!:(

:(

I find it comes in waves. So you will have lots of days when 'it's better'. Then randomly you'll have bad days as well.

Everyone has 'difficulty accepting' it. Use all that energy to fight for him and investigate / trial all the different treatments / therapies / interventions that are out there.

There are many many ways to improve your DSs life - so don't 'accept' it. Or at least not yet.....

What did you find most difficult about the meeting?

Went to my first support meeting for parents of children with ASD last night. Found the whole experience very depressing ...

OMG - I that's how I felt. Went twice and thought - No, this is not for me.

The parents at the group I attended were either so apathetic, accepting and unwilling to make a fuss that their kids were going without adequate support and they could not / would not do anything to improve matters or they were evangekical 'experts' in ASD, totally overprowering and depressing.

I decided to go it alone. Funnily DS felt the same way at a youth club for Aspergers. He didn't want to be around people with the same dx as him - he wanted to make friends with NT youths.