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Ds got official diagnosis today

8 replies

tiredmummyneedswineandsleep · 17/01/2011 18:07

Autism Spectrum he is 3.5.

Haven't cried yet. Have shed plenty of tears in past few few months and many a sleepless night. It feels a relief in a way and I hope it will open up more support for him.

Have spent a large part of the day letting professionals involved know and arranging OT and informing DLA and Special Needs Education Dept know as they have a panel meeting on 26th to discuss if they'll agree to statementing process.

Thanks to everyone on here who had offered support and advice over past few months.

OP posts:
SauvignonBlanche · 17/01/2011 18:10

It's a strange feeling isn't it? I felt relief mixed with sadness.
I remember the lovely words the child psych said who gave me the dx, "he's the same child now that he was this morning".
Good luck! Grin

StartingAfresh · 17/01/2011 18:10

Oh poor you. Even if you've 'known' for a while, that dx is your last shred of hope that it can be all fixed with a bit of better parenting or something isn't it?

Take care of yourself. A dx is a real turning point. Not promising you won't have a fight but you now have something to fight WITH.

AttilaTheMeerkat · 17/01/2011 18:12

(((((((((((((((tiredmummy))))))))))))))))

If you have not already done so would have a look at NAS's website when you can as that may help you as well.

Have you already made a Statement application?. I do hope they agree to assess but if not do appeal their crass decision!.

You are your child's best - and only - advocate. You are the best person to fight for his needs to be met.

Thecarrotcake · 17/01/2011 18:18

This is just the begining.. And it will move forward from here on in... :)

little steps and keep your expectations high..because now you know you can push those doors open and know that you are doing and putting the right things in place.

Try and have a ' night off' and a glass of wine tonight.. Give yourself sometime.

Spinkle · 17/01/2011 18:20

Yup. Be kind to yourself.

(())

You can start the fight tomorrow..

HelensMelons · 17/01/2011 18:33

Be kind to yourself; give ds a lovely cuddle and try and make some time for yourself x

tiredmummyneedswineandsleep · 17/01/2011 18:44

thanks -today has been pretty full on. to add into it had washing machine repair man come and told me it's dead- motor blown up! thankfully landlord has to replace it but the thought of more days without one and a ds with no aversion to poo is bleak! i dont drive so no fun there- have been using my parents one.

also had to ring stonemason who was meant to have dd's replacement headstone up LAST AUGUST! more fobbing off. promised it will be done a week fri= it better had as was aug, then sep, the nov , then dec.

anyway back to ds i hope and pray they'll agree to the statement out. they did say ring them anytime- haha i will!

doc said same he's still the same child even with diagnosis and def agree. it's taken me a long time prior to diagnosis to accept but i totally have now and will continue to fight tooth and nail for him.

OP posts:
auntevil · 17/01/2011 19:25

Sending the vibes your way tiredmummy. With all these references to 'Miranda' that keep popping into threads, another song came into my head (not Heather's - sorry!). Do you remember Yaz? 'The only way is up, baby'.
I hope that after all the worry pre-diagnosis that this is a new chapter and that the only way is up (forward?) Smile

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