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SN children

Here are some suggested organisations that offer expert advice on special needs.

new test for DS aibu to think this horrid?

9 replies

2shoes · 12/01/2011 09:31

here

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bigcar · 12/01/2011 09:39

I don't get the obsession with ds when there's so much more that can be affected/go wrong. It's almost like if you test clear for ds then all will be fine and nothing else will go wrong Hmm I don't think I'd be signing up for that one.

tabulahrasa · 12/01/2011 10:17

from reading it it's instead of an amnio or cvs though isn't it?

I know people often refuse those because of the risks, I'd assume a blood test instead would be a good thing?

Brighterlife · 12/01/2011 10:30

It's a blood test, which is what they do already, this is more accurate, and reduces the need for an amnio, which carries a miscarrage risk.
It's just more medical progress.

rezbites · 12/01/2011 22:15

To test or not to test? - it's a thorny question.

I can understand why a blood test is preferable to a more invasive, more risky procedure. But, like bigcar, I too do not understand the obssession with testing for DS when there are so many other disabling conditions that cannot be tested for.

I have one son who has an ASD - which cannot be tested for prenatally - and one son who has DS, which of course, can be. Both of them are wonderful human beings. If I had had a prenatal diagnosis with either of them I would have come under tremendous pressure not to continue,then I and my family would have missed out on two unique, beautiful and very lovely members.

2shoes · 12/01/2011 22:17

rezbites thanks for you post, you kind of sum up why I think it is "wrong"

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pinkorkid · 12/01/2011 22:33

[http://spuc-director.blogspot.com/2010/07/carefully-targeted-killing-of-downs.html]

Some more analysis of this story here on this blog.

tabulahrasa · 13/01/2011 10:59

hmm

That blog is quite a cynical viewpoint though and yeah that's a valid objection, but...

I was thinking of it as a good thing in that, it's preferable to know than to just have to wait and see - not for termination purposes

but thinking about it yes I suppose it does increase the chances of people terminating Sad

badkitty · 13/01/2011 13:35

I was really shocked and sad when reading recently about the current tests that 92% of people told they are carrying a baby with Down's choose to terminate. 92%!!! Its so sad and I'm sorry but it does seem like eugenics to me. I went for 12 wk scan yesterday and told them I didn't want nuchal test which caused shocked looks and cat's bum faces from receptionist and sonographer. Clearly from their reactions it must be unusual not to want to know but I think having one SN child already, gives us a different viewpoint from most.

2shoes · 13/01/2011 13:38

i think it is lack of education, people just think "disability " and don't want it, I know I had no idea back in the pre dd days.
how sad that people feel the only answer is a termination. sometimes not even once(I have read that on mn)

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