sorry swearing, but this roundabout is a fucking nightmarish one

[dispondantandthensome]

pillared to post.

professional to professional.

none of which can tell me what (if any real thing) is wrong with my ds (7 tomorrow).

Has he got as? has he got mild autism? can anyone tell me???? arghhhhhhhhhhhhhhhhh

How can i come to grips with it all if I am at a loss to know whats his condition.

Pah

Oh poor you.

I know this is an odd thing to say, but treat him as if he has.

The strategies work for any kid even NT, so just get on with it. Don't wait for a dx.

The is he/isn't he roundabout is a fucking nightmare I quite agree.

Alternatively, if there is any way you can afford it you can buy yourself out of hell with a private dx, although I admit that you're likely then to go to a different hell afterwards

no pennies for a private dx (never even knew there was such a thing
what upsets me most is i adore him and want his difficultness to be down to a dx as otherwise i could almost hate him :(

i couldnt really but i am always having to allow for him and sometimes IS he just being a brat / CAN he help it / I cant do more :( but feel worrried about his and our family future.

a lonely road no make that a lonely long daunting road

I've been there DS is 16 and is going to get reassessed for autism I have to agree with what Star says we've always treated DS as if he has, he even goes to a school for kids affected by ASD.
We all have our bad days I've found the support on here brilliant even if you just want to let off steam there's always someone to listen.

thanks

what i dont get tho is why its such a long arduous process

i am not a professional in the field why cant the so called professionals actually suss my son out so i can atleast read a little and try to educate myself a bit and dare i say it, understand possibly get some strategies.

I have had no advice no help just loads of medical histories its getting TEDIOUS pah!

I agree -treat him as if he has - My son has a partial dx and the doc who was re-assessing has just buggered of to another part of the country..back to square one-but the advice you have been given is what we do

Another one to agree here - also see if there is a local ASC/Apsergers support group you can go along to. May even be possible to get on a course for parents (not always possible without a diagnosis I know, but they sent us on one here, and there are some good NAS ones - check their website).

I found it really hard as I wanted that diagnosis to 'legitimise' me, but actually going to the course helped me be more sure about what we are facing and really helped with strategies (once I stopped feeling defensive and angry about it all ).

Totally understand the frustration of being sent from person to person. We expect a diagnosis next month - it will have taken 2 years, DS is 9 and we first raised concerns when he was 3½ - but from what I read on MN this is not unusual

Well I for one think that anyone who takes this process on is an absolute DIAMOND x x x

(pat on back)

Seriously I have been frustrated by the process and it seems especially like that, I think, when you potentially have a child who may well be on the cusp of a condition. Mine seems that way tho at times it is very certain something is wrong.

Hope you get someone to listen soon x

We are in the same boat with Dd3[8]. She seems to be borderline everything.

Borderline social comunication issues,
Borderline Motor issues,
Borderline ASD,
Borderline Visual perception issues.

We have seen 3 paeds, a SALT, 2 OT's and now CAMHS.

Oh and a partridge in a pea tree.
.

That should have been "pear tree"

I want to add that wondering whether a particular action is due to (potential) ASD or normal behaviour for that age is par for the course for us:)

I react to some behaviours with tolerance and work around the triggers for them. I react to other behaviours with more traditional parenting, hopefully when I'm sure that he's trying it on.

The only way to be sure is to see how he then reacts over the next few days. If I have made a mistake he shows more anxiety. Keeping track of how things are in a diary each day really helps. I can see how one stressy incident leads to others. Then I can resolve to approach life more simply and calmly to avoid making the same mistake again.

Loool love that comment!!!!!!