So you wait and wait for an assessment, get one and then you're left wondering what next

[Peaceflower]

I don't really know what I'm getting at, or saying, but since dd was diagnosed May 2010 with As, I've had this thought/niggle.

You fight for a dx, get one, and the you're just LEFT.

If you follow my thinking, when you see your GP for an ailment, he diagnoses and prescribes something, or refers you to a specialist.

With the dx of As, that was it - no follow up, no prescription/management/solution. The clinical pscy who made the dx was not available to answer any queries post dx,

I'm probably not making much sense, but just wanted to write this, as it's been worrying me .

Yup you are just left.. Unless you have a strange child like mine, who collects dxs!

But basically you are just left.. If your lucky you get a leaflet!

Oh Peaceflower you make perfect sense. And you are absolutely right too.

It's because the 'treatment' for developmental delays is not undertaken by the health service. Currently it is the responsibility of education.

I wish they'd stick it under the NHS tbh. Then you'd have some proper come back re medical negligence for being abandoned and you'd know that the 'treatment' had been properly researched and evidence-based, not simply left up to professional 'opinion' which has been formed by those with no training in evidence-based practice etc...

I hate that feeling but it does pass after a few weeks, when you learn you have to carry on fighting for services :(

Starting totally agree with you!
And the majority of those who are supposed to be helping our dc's have to have asd and it's complexities explained to them!

Your best bet is to read up, work out what works with your dc, come on boards like this and use the collective ideas and almost do it yourself!

It just feels so wrong .

Imagine if your GP diagnosed x, and then you're left to work out what to do by yourself,

But, as others have said, we need to become the experts, and come on boards like MN, and lurk, and share