sleep apnea

[nathollyandmatthew]

hi does anyone child have this and if so what type of help and support do u get

my son matthew is 15 months and we have just been given a community nurse

hes due bk at great ormond street in 8 weeks to have another sleep study done

would b greta to talk to other mums who child has this

thnaks
natalie

anyone here know what im going thorugh please

love natalie

Don't have any experience with children but my dad had this and had to use a CPAP mask at night. Sorry, I can't really help beyond that though. Is there a sleep apnoea supoprt site somewhere maybe?

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hi ya
matthew sleep study showed he has a problem took us 7 months to be belived i kept on and on at them telling them he bretahing was very bad and i idnt get listened to
we spent 5 nights in our local hosp having a sleep study doen and they sent us home saying there was nothing with him

we have a alarm which goes off alot, and he has a app 2morrow wiht my gp to see if he needs to be referrred to the ENT as apprently hes tonsils r quiet large

so will see 2morrow what happens
thnaks for replying

love natalie

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Matthew is 15 months and has probs sicne he was born with differnt things,
he has asthma, dairy allergy, sleep apnea, seizures, reflux, prob with swallowing, was classed as failure to trhive last month

he gets alot of chest infections, hes just getting over his second lot of croup in 2.5 months

we have been given a community nurse now which will help us out alot with the support

the sleep apnea we have noticed since february since we bought a alarm so it could of been going on longer than that,

what probs does ur child have then?

love natalie

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thanks girls
matthew alarm just went off the first time in 2 weeks, and hes pulse was only 70 and hes bretahing was very shallow, abit of stimulation and he was fine

we have the angel care alarm which we bought, the hops have said matthew is to big for a machine

hes sleep study showed his o2 levels dropped to there 80's they r normally 98-99% in the day

u btoh sound like u have also had hard times,
they thought matthew apnea was due to his reflux but the meds his on for that havent imrpoved it so we now know its a seprate prob

thnaks hopefully will get somewhere 2morrow

love natalie

matthew is now in hospital after being rushed in on wednesday after i found him lifeless, he has to stya in til a bed becomes available at Great ormond street which could b weeks

we r not aloowed to bring matthew as its to risky and theres been talk about a operation

please say a pray for my little man
thanks
natalie

Really sorry to hear this Natalie. My thoughts are with you

Hi, only just seen this natalie. So so sorry to hear what you are going through. Harry ahs a klot of the same probs as your little one, but not the sleep apnea. Did you used to go on the 'matthews friends' web site? I know its hard being in hospital, but at least they might sort this apnea out now. They will prob give you more sofisticated machines as well now. My friends little girl has a trachioctomy and has a machine which tells them if she stops breathing for even a second. Let us know how he is as soon as you can. Thinking of you, take care

nhom: just to let you know that the BabySense II monitor comes with TWO pads instead of just one (like the Angelcare).

The idea is two pads can more reliably cover a larger area and take into account more movement / exploration by the baby. Might help you a bit ?

hi all we got bk from hospital on thursday after 9 days we got a bed on tuesday and matthew had loads of apnea on wednesday nite where the nurses had to bring hin round
we have now had the prob identified as central sleep apnea meaning his brain isnt fucntioning right so he needs a MRI under GA as sedating him would be to serious
they also think he has a gentics condition so he needs a bulbar EMG, sleep study and a few other tests done
i was really hoping it was the reflux and now this is a big blow
thnaks all for ur messages
love natalie

Hiya Nat.

(its me Michelle, from mommies) i know this will sound odd but i a, soo glad that Mathew finally has a diagnosis. at least they can now start to help him. sorry he has to have more tests but at least they are narrowing it down.
it made me so angry that they have left you for so long telling you it was Epilepsy at first just because they couldnt be bothered to do any real investigative work.

grrrr NHS.
anyway, hadn't realised you were here as well.

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does anyone child suffer central sleep apnoea?

love nat