sick of changing nappies

[hermitmum]

what age can i expect my nearly 7 year old asd to start using the toilet?

it seems with asd there are no easy answers. thanks for your message riven

dd has severe cp and she was about 11 before she was dry, so don't give up hope.

I don't think there is an age as such tbh. dd2 (ASD) is partially trained aged 5 and ds1 (very autistic, non verbal) is nearly trained aged 9. It is very tough and there will be plenty of people along to share their stories. ds1 has been toilet training for nine months and he has only made progress in the last four months. I think it takes masses of perseverance - we only really joined in when school had started to make some progress as I just couldn't cope with it when he was just weeing everywhere.

thanks nightmarebeforexmas

garry is 36 and still wears them

myra

i dont mind the wee too much, cansu, its the poo i'm getting fed up of wiping

i'm sick of my family telling me he should be toilet trained by now, like all the kids at school.

Does your ds attend a special school or mainstream? Is there any way you can ask school for support? I honestly don't think I would have been able to do it with ds1 without the school's support.

he doesnt like laying down so i have to change him standing. its awkward but i can do it with my eyes closed now, as i often do at night :)

he goes to a special school but they make him wear pants and send them home dirty for me to wash everyday

wiping poo off a 14-year-old's bottom - plus legs, willy, hands, my own hair where it has been smeared... - isn't fun, though DS1 has learned to do poos on the toilet a few times a week which is fantastic. hermitmum, that's an odd thing for your son's school to do, though perhaps it will accelerate his toilet training?

Not good Riven, though I trust you don't get smeared in the stuff at changing time! Not that it's a competition of course!

riven, re the holding up legs to wipe poo - dd1 is still in nappies overnight, abd like you I have found it hard to holdup her legs to wipe her.

I now have her lying on the mat, and, with her knees together and bent up (feet flat on floor), roll her over to one side form the waist (a bit like some obscure waist-trim excercise!) and wipe, then roll her over to the other side, and wipe. it works pretty well

O.k- I asked a similar question a couple of months ago-my ds has cp and lots of issues,dx of autistic traits(though it's faaaar more than that)anyway after I had given up all hope,he has started to go on the loo-he doesn't ask,but today he's had 5 wees on the loo-(he will also poo if you catch him at the right time)-don't know what changed;don't know if he'll ever ask to go ;but from 2 months ago to where we are now is mind blowing- NEVER GIVE UP HOPE !!!!!

Riven have you tried using the enemas regularly to manage bowel movements?
ds has one every morning and sits on his toilet chair to "perform" and thats it out of the way for the rest of the day!
re the pubic hair issue...i'm hoping to talk ds into a back, sack & crack wax once he hits puberty!

It's tricky but possible to do the whole thing with the person standing and you behind them. I worked with someone who would hairpull and head butt for a while, and had to learn!!

With smearing, I would suggest cleaning hands first, at least getting the worst off with baby wipes, then distracting with a toy while you deal with the other end. Although luckily, I've always been one of two members of staff in that situation so I appreciate it's very different.

You can buy (or I can make for you ) cotton or silk suits which zip up at the back. It doesn't stop the compulsion to smear, but it does limit the opportunity. And the sensory part can be redirected to something a bit more hygienic, like playdough...

To bring a bit of hope my 9 year old nephew is starting to become toilet trained, he has very severe autism and limited awareness but it's getting there. He pees in the bath tho but meh.

Their is always hope.

my son wont wear those zip back suits, he hates wearing any clothes at all. he has never had regular bowels. he does it little and often and puts it everywhere, or he holds himself fot two weeks. dont think it helps when he wears pants, it makes him worse

all the professionals ive seen about this, just keep telling me to keep taking upstairs to the toilet every twenty minutes! i kept it up for half a day and then i was exhasted aand couldnt fight with him any longer. i dont think his limited diet helps and he has ccoeliac, but you cant force him to eat

purple, I always stand behind him but he simply reaches round, puts his hand in the poo and then and grabs my hair! He has also started ripping his nappy off as I change it and sometimes I just can't get in on. Really, we need 2 people to change him but it's not often possible at home. It is one of my most fraught times and I know it agitates him.