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its been a bad day today

17 replies

jenk1 · 30/09/2005 13:26

ist of all my dla reconsideration was turned down and then secondly.....

my social worker has been round to see me and dd today to help me get out in to the community and see if she can help me with dd,s development as she is behind.

dd is nearly 18months and not walking,not weight bearing only started bum-shuffling 6 weeks ago, she was starting to say some words but has gone back to baby babble,she used to sleep 13 hours a night but now wakes up every 2-3 hours,shes very unsociable and screams if anyone visits including family.
shes not really interested in her toys and when i get them out for her tidies them away and worse still she doesnt point to things but just cries and winges all day.

i dont need to say anymore as i have suspected for a while that she is going the same way as DS.

Socail worker used to work for the council as a developmental nurse with babies and children and has only confirmed my fears, she thinks dd is on the spectrum

my gp and hv think so too and have referred me to the paediatrician at the hospital and i have an appointment next month.

Its just really brought it home to me cos the socail worker sat and observed dd for over half an hour and she has years of experience, but she only confirmed what i already thought.

i havent the heart to tell DH it would break his heart, he still hasnt come to terms with DS.

i feel wretched today and like theres no light at the end of the tunnel, BUT i have been through all this with myself and DS and know i can with dd.

OP posts:
Saker · 30/09/2005 13:29

I don't know what to say that can help but I wanted to say how sorry I am that you are going through this.

dinosaur · 30/09/2005 13:29

Jenk1 I'm really sorry. That's a heavy load to bear.

macwoozy · 30/09/2005 13:32

I don't know what to say either but am sorry to hear that you're going through such a rough time

chonky · 30/09/2005 13:46

Jenk1, I'm really sorry that you're having such a hard time of it at the moment.

sweetkitty · 30/09/2005 13:48

Don't know what to say jenk (((((((((hugs))))))))) the thing about bad days is there are always good ones too

sansouci · 30/09/2005 13:48

I am so sorry, jenk1.

Fio2 · 30/09/2005 13:52

its bound to be incredinly hard for you jenk1

jayzmummy · 30/09/2005 13:56

Awww Jenk...Im sorry
You can do this though because like you said in your post youve been through it all before and come out the other side.
Thinking of you.xx

Merlot · 30/09/2005 14:13

Jenk

Dont know what to say...but sending you a big hug.

heartinthecountry · 30/09/2005 14:20

Can't begin to imagine how you feel... hugs.

RnB · 30/09/2005 14:22

Message withdrawn

Cristina7 · 30/09/2005 14:25

So sorry you're worried about your DD. It takes a long time coming to terms with any problem our babies have. Have you introduced some signing to help while your DD develops more spoken language? (((hugs)))

jenk1 · 30/09/2005 16:08

rnb- i dont know what test she performed, she was taking notes down, but she didnt say she was doing a test she just said in her opinion all the signs were there and that next week she would bring me a development chart for a baby dd,s age so we can start making notes for the paediatrician.
what is the CHAT test by the way?

Cristina- i havent thought about signing but i know that my surestart do signing classes for babies so thats something i will probably do with dd.

thanks for all your messages everyone

OP posts:
dinosaur · 30/09/2005 16:10

chat test

jenk1 · 30/09/2005 16:19

she got on the floor with dd and tried to get her interested in toys but dd just moaned, she also tried to get her attention a few times as well but she didnt ask me any questions.

incidently dd did use to point at things a few months ago but has stopped would this be an indicator?

OP posts:
jenk1 · 03/10/2005 11:33

sat DH down this weekend and told him what the social worker and my HV have been saying.

Its not been fair of me to not tell him but i knew how he,d react and he did exactly as i thought.

He cried on my shoulder for a good 10mins

He said "oh no not all 3 of you thats too much"

My mum came round yesterday and i told her and she said she,s not surprised as she,s seen it coming, she was really supportive and told me what a good mother i am etc

I can see in dd autistic traits especially since the Social Worker came round

Just have to wait until 07 november now to see paediatrician

OP posts:
pumpkinosaur · 03/10/2005 21:15

jenk1 sorry he's taken it so badly. I hope that he can come to terms with it and help to give you the support you need.

Thinking of you,

dinosaur (changed my name for halloween)

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