Wondered if any one else had experience of this?
Ds had an x-ray yesterday. One of his thigh bones is virtually straight with the ball on top and a very shallow hip socket.
Person we saw mentioned surgery.
As far as I understand it that would be to ensure that he remains active, sitting independently (has really deteriorated recently), prevents spine misalignments (we hope) and contractures (we hope).
But it's obviously a major major op and a horrendous thing to put him through.
Wondered if anyone else has experience of this and what they thought the pros and cons were and what they decided to do.
Also understand before- and after-care hugely important, but not very clear on what that would entail other than cast and specialist seating and standing frame. Worried whether he'd actually get that as well given our experiences to date and whether that would affect the outcome so much that it would make the operation too much to ask.
If that makes sense.
Would love your views. Seems like it's one thing after another at the moment. Thanks.