How does bibic help? What is their purpose for an asd child?

[mamadadawahwah]

I really want to have my son looked at closely and scrutinised as he has been making big leaps lately. I dont want to go back to the medical "profession" but want some real time to be spent looking at him. What, if any one can tell me, is the point of bibic? What do they do in terms of diagnosis. Are their opinions taken seriously by the NHS?

many thanks

I have no idea, but make sure you keep this bumped, lots of people on here have been and feel as though they have benefited.

i know people on here that have found BIBIC to be very helpful re:sensory issues, and at making recommendations to help with behaviour, and giving you a program of activities to help your child.

Have you looked at their website? We went in August with DD2 who has Tourettes, Dyspraxia and behavioural issues. They spent a lot of time assessing her strengths and weaknesses and we have a programme we are supposed to do daily (we do try) plus suggestions of other things that will help her. They identified sensory issues which I had already suspected. What they suggested, in the main, made a lot of sense. They spend a lot of time with you and your child as a family and you can contact them, as you wish, afterwards. It has made me allocate some time to spend with DD2 to help her although some of the things we do I hate and I may drop before long. They are all very warm, caring and friendly. I do have a few reservations about certain aspects of the programme actually working (because I am cynical in nature!) but if we don't do them, we will never find out, I guess. I don't know if this has helped but feel free to ask more or CAT me if you like. There is a free telephone/personal consultation before assessment by the way.

thank u sylvm. I have looked at their website. I have a son with asd and what i want is someone to explain to me in detail his strengths and weaknesses in a multidisciplinary fashion (impossible on the nhs!) However, its expensive and i just want some feedback on whether it would be worth our while going.

I want to place my son in an aba home program but would sort of like to do this first so that I KNOW where he stands so to speak, in terms of his functions.

We've been to BIBIC and found it a wonderful experience. But as Ds2 doesnt have an ASD disorder, cant speak from that perspective. Good Luck though

Merlot, was wondering how much of the programme you do and how often?

Pages, you have made me blush . You've touched a guilty spot

I am doing most of the speech and language therapy suggestions and about half of the sensory programme suggestions. I also dont repeat the programme every day of the week Some of the sensory stuff I havent even started yet - there doesnt seem to be enough time in the day! When they said how much do you want to do, I said whatever you'd like me to do - so came away with too much I think. As a result we have postponed reassessment until next year. Not much point going back for the 6 monthly reassessment when we are not fully up and running with the initial stuff. Also Ds2 has just started nursery, so there is even less time now.

How about you? How much are you doing?

Phew ... glad it's not only me who hasn't managed to keep it up in its entirety. I've been getting quite stressed and feeling guilty cos I've not managed to do all of it every day. There are bits I can deal with and bits I HATE with a vengeance and sometimes I just cannot deal with it. Hubby says if I feel like this I shouldn't do it all every day because DD will pick up on how I feel .. and most of the time she's been brilliant about doing her exercises.

We've been twice. The first time was a wonderful experience for us all as a family. We learnt so much during our time there and the most important thing we gained was the understanding of DS2's condition.

It made us realise that DS2 has his strengths and weaknesses and that no matter what, his condition was going to be there forever and not disappear overnight. It was an extremely emotional time for us all but we had great support and the therapists were amazing with us. They made us realise that although DS2 is never going to live an independant life, there were things that they could show us that would help DS2 overcome some of his difficulties.

We have followed the programme. We have changed our diet and we feel there has been a definate improvemnet in Ds2.Both DH and I are not sure whether the change is due to the programme or our change in attitude....I suppose it could be a bit of both? His emotional outburst are awful but his sensory problems have improved so much.

Our second visit did not go so well and I do not want to post the reasons for this on a public forum.

We are due to return next month for our 6 month review and its highly unlikely that we will attend. DS2 has moved on a little but we do not feel we would benefit from another session just yet.The therapist has visited us twice at home and I have regular contact via email and telephone.

During our first visit we paid extra to be seen by the EP. He gave us a very detailed (47 pages)report of exactly where DS2 is at. Without that report we know we would not have been sucessful in getting DS2 a placement at the special school.

The SALT was excellent and she made some very detailed recommendations for our local SALT to follow up...due to this DS2 was dx with SPD by the local SALT and this triggered DS2 to be seen by the local ASD specialist language therapist.

As for the local paed accepting the BIBIC report....just search back some of my posts and you will see that he would not and still will not take on board anything that was written by BIBIC....but the guy is a fool and mistakes me for someone who cares what his thoughts are

The fact that we live in a neighbouring HA helped us, as the EP and SALT were known to the LHA and LEA.

BIBIC offer a Bursary for families who have problems with funding assessment although this does not cover the EP or CP assessment and at £900 each its quite expensive!

The initial assessment is free and can be offered over the telephone. The therapist will tell you if they can help or not....so you have nothing to loose.

If you want any more info, feel free to CAT me.

It's all a bit hit and miss with me too, and there is no way I sit down and do the programme for two hours per day as I said I would.. But like all of you, I do incorporate bits of the programme into every part of our daily lives with DS1, even if it's just rubbing his head and tickling his face while he's watching the teletubbies.

I have also found the BIBIC programme has been helpful in the statementing process, justifying the extra hours so that they can do teh programme at nursery.

I didn't feel that BIBIC was appropriate for us as we're a long way down the line, know DS very well and understand his problems clearly. We had also been involved in lots of intervention (fulltime ABA) and evaluated and used (or not) other interventions. I think RnB found someting similar. I wasn't too sure how well they understand autism but I'm sure I could be wrong about that and they may certainly be worth seeing if you're far from clear about your child's problems and need an objective and thorough review of your child and how the family functions. Plus you come away with tangible things to do which are desperately needed but in short supply. But again, its expensive.......

hi

We're off to BIBIC Halloween, (Aspergers) but in the past I have also worked alongside BIBIC, as I lived in Bridgwater for many, many years.

RE Autism, they have some excellent therapists there who really know the field well. We used them as contacts when we (I worked for HomeStart) were setting up parental support, and also they came and did training for our volunteers in Autism and ADHD, all of which was excellent. Having grown up around both BIBIC and thr Kerland Foundation 9now known by a different name? not sure, but does similar work), I do know the reputation is extremely good and I know of several very happy parents, one set springs to mind who were exceptionally marginalised and whom we could not work effectively with (they wanted far more than we could offer), but with whom BIBIC managed to buiild a relationship, support and get educational help for, their son and make a big difference.

I'm going to BIBIC Cymru which is new. I don't know what it will be like for certain and I can only hope they can help Sam with his extremes. But I do feel confident in their reputation and with the therapists I have met.

Oh, we got funding from DH's trade association

I forgot to say we asked for all M's reports to be sent to her school. The Head was obviously quite impressed because she says they'll be incorporating some of the activities suggested into their programme. I was also approached by another parent with an SEN child for details following a suggestion made by the Head.