anyone seen this? Child with CP in nursing home.

[lisad123isasnuttyasaboxoffrogs]

here

Im not sure why but feel very sad that this little lad will spend life in a nursing home. I know I cant judge as Im not in the position.

She trying to get SS to pay for carehome and not FC as she thinks they are doing it because its cheaper (they might well see it that way)
But I think I would rather my child be able to form close relationships in a family setting than a care home with countless carers :(

Im sorry if I have upset anyone posting this. I havent commented on OP as I dont think I would be flamed

Same as my friend Riven, he is asd too.

The cruel thing is when he was born she was given the option to let him because he would be so disabled, she of course said no, he then developed okay, she has videos of him decorating the christmas tree and singing nursery rhymes, he started to regress when he was about two, the seizures were out of control, they went on for hours, he was having hundreds daily, a lot of his damage has been caused by lack of intervention by the hospital.

He rarely has a seizure now, but the damage is done, she says she buried the boy he was a long time ago and carries a lot of guilt, it's valium which keeps her going.

My other friend has adopted her grandson, he has West syndrome and probably suffered further damage through the drugs and alcohol his mum took through the pregnancy, leaving him unable to do anything for himself, can't speak, feed himself. Nada. My friend is almost 70, crippled with arthritis and should be enjoying her retirement, she gets 4 hours a week respite and has had one night off in 10 years.

There are no easy answers. That article/blog/appeal, whatever, really made me think. How much do I sacrifice DD2 & DD3 for the sake of DD1?

Days like today, I realise that there are no winners. We are all just trying to do the best we can for our children. It isn't DD1's fault that her brain goes haywire, is it?

interesting posts, shocked at how hard life can be.
but do still feel so sad that a 6 year old would be placed in "care" there has to be more support so children can stay at home.
saying that I think it will only get harder, having seen ths DLA thread, I wonder how many parents will have to make this sad choice in the future because keeping thier child at home won't be possible.
yet no mention of this anywhere, sadly i think the government will sneak it through whilst everyone is complaining about the idea of adults paying for their education.

all just makes me so sad

same with the adult students.
massive hysteria.
yet DLA not a murmur.

ahh but the middle classes never like EMA as they didn't get it.

yes starlight. The private 'care' industry is a booming one. Makes me fearful and sick at the thought of people lining their pockets in this way. I would like all care to be at the very least, done by non-profit making organisations (without Chief Execs on massive salaries like Housing Associations)

I somnetimes wonder if that is what they want
all disabled people shut away out of site,
then the parents/cares can work