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Here are some suggested organisations that offer expert advice on special needs.

please help give info re: aspergers

7 replies

roobars · 22/11/2010 16:17

I have an eight year old son who is having problems at school and has been since he started. At the moment CAMS are in the process of refering my son to Harper House in Radlett. I have been warned that he may not gain a place on the waiting list, with a view to be assessed for aspergers syndrom and if he does gain a place, the waiting list is long. Can anyone share their experiences of Harper house. Hong long they waited for an assessment and what the actual assessment involved. I feel a bit left in the dark!

OP posts:
SausageMonster · 22/11/2010 19:25

Sorry -no experience of harper House

bunp

moosemama · 22/11/2010 21:39

No experience either, but managed to find this via google.

There's a link on the lefthandside that says:

"If, after an initial assessment, it seems that there are only moderate or low risks to a person?s independence, we will still provide information and advice on other possible sources of help. We also fund many local voluntary organisations to provide services that can make a real difference to someone?s daily life."

It seems they have a multidisciplinary assessment team. Which basically means that several specialists (eg paediatrician, child psychologist, speech and language therapist and occupational therapist) will all be involved in some part of the assessment process.

My ds, who is roughly the same age as yours, is expected to reach the top of the waiting list for his multi-dip assessment in April 2011 which will be approximately 18 months since we were initially referred. Waiting lists vary greatly from area to area though.

In our case that was far too long to wait. We went to our gp for a referral to a paediatrician, who gave us a verbal diagnosis of Aspergers last January. Since then I have managed to get support from the Educational Psychology Service and Specialist Schools Inclusion Team (there should be one in your area), but it hasn't been easy and I've had to fight all the way along.

Are you in touch with the school's SENCO (Special Needs Education Coordinator)? If not, I would arrange a meeting asap, to see what the school could and should be doing to help your ds. In our case the school told me that the inclusion team wouldn't get involved until ds had a formal diagnosis. I rang them myself and was told categorically that that wasn't true and I could get my gp to refer him to them.

roobars · 23/11/2010 09:20

Thanks for your help.

We have been seeing the senco pretty much since he started the school. He has also had various ed psychologists assess him and write reports. They have hinted at my son's difficuties requiring further investigation but no one sticks their neck out and tells you what they are really thinking.
My son does get a lot of support at school in terms of meetings held around his difficutlies and stratergies put into place to help his behaviour but I get the impression that until the school know what they are dealing with, he is classed as a child with behavioural problems.
My research into diagnosis has found that it does vary from area to area.
This has been such a long process and such a battle!
I will take a look at that link.
Thanks for your help.

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moosemama · 23/11/2010 10:27

You are welcome.

Have you tried calling Harper House yourself?

I was told by the Paed that assessment centres are used to people calling to see how long the waiting list is and I should give them a call if I had any worries or queries. When I called, they told me how long he was likely to be on the waiting list (later confirmed in a letter from them) and they also talked me briefly through the assessment process. I found it really helpful.

Might be worth a try?

roobars · 23/11/2010 14:45

I have called them today and they have advised that the waiting time is upto 18 weeks. Better than I had expected!
Many thanks

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moosemama · 23/11/2010 14:50

That's great. A lot better than 18 months!

Hope you get the answers necessary to get your ds all the support he needs.

roobars · 23/11/2010 16:05

Thankyou and the very best to you and your ds.

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