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It is just dawning on me that we might be facing investigations for cerebral palsy

51 replies

hobbgoblin · 20/11/2010 23:33

I am slightly jumping the gun here but have been doing a little bit of DIY research since the paediatric referral could be 6-8months for an appointment.

DD is 16 months old in 3 days. She does not weight bear voluntarily at all and can only do so with support for a few seconds. She is also being investigated for strabismus on Monday.

On the reassurring side, DD has very good fine motor skills and seems to have good cognitive skill. She is happy and content. She is a bum shuffler which I know can delay walking, but the concern is the lack of weight bearing. When I first mentioned this issue to the GP a couple of months ago she too was concerned about non weight bearing rather than walking.

DD experienced Bradychardia during labour but recovered had an apgar of 9.

Can any of you with experience help me make sense of things. I am increasingly concerned, and very frustrated that it will take so long to be seen. We would consider paying (rather, DP would/could) for an assessment if it seemed wise or it improved any prognosis longer term if there was indeed a problem.

Am I imagining that strabismus and inability to weight bear at such a late stage are markers for CP.

OP posts:
isw · 27/11/2010 22:39

Hi,
Have skimmed the thread, have dd who is nearly 3 who has cp and squint. excellent you have seen the physio I would def recomend this book
teaching motor skills to children with cp, sorry on phone so cant do links! You can get it from amazon, even if she doesnt have cp it is excellent for any child with gross motor delays. hth

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